My first visit to St Thomas' today was so worth the drive up from Bristol. To be in the presence of the distinguished speakers Professors Hughes, Rahman, Regan, Hunt, Khamashta and Dr Somerville was interesting, enlightening and valuable to both myself and my daughter (she's my ears and memory bank).
It felt good to be able to hear from the horses mouth about the syndrome and the positive steps being taken on our behalf. I am thankful to you all for your knowledge, dedication and understanding of what we as patients go through on a daily basis.
I was also very pleased to meet and speak with other patients; the first time I have even met someone who suffers similar symptoms as myself. In particular I found another Bristol lady and having exchanged phone numbers intend to meet up to discuss the possibility of sharing awareness of APS in the area. Perhaps a Support Group for Bristol/South West? Who knows, it's early days.
Anyway, it's been a long day and I'm off to my bed.
Once again, my thanks to all those who made my trip to St T's so worthwhile.