What APS symptoms do you have other than a clot?

[Jade]

I am curious what symptoms people had or have prior to diagnosis or after other than the usual clots, dvt or even miscarriage.

I am trying to find what we suffer that is not well documneted in all the books.

[bernieembleton]

Hi Jade migraines, short term memory. Look on the Hughes foundation site. You will be able to see the list of symptoms patients may suffer with. Hope this is helpfull.

[marycath]

Hi Jade

if you are curious about Hughes/APS, you might like to buy these books. I have found them full of knowledge and experience:

Sticky Blood by Kay Thackray

Understanding Hughes Syndrome: Case Studies for Patients by Graham R.F. Hughes

They can be purchased through the Hughes Syndrome Website

[Jade]

Actually I am doing this for my son, I am diagnosed seronegative by Prof Hughes and have had warfarin for 8 years now. My son and I think he has the same problem though not all his symptoms are the same as mine. Before we see Prof Hughes I wanted him to document everything but its hard to know what to associate with the condition as many symptoms seem trancient. I hoped other people experiences would help jog his memory.

[jessielou]

Hi jade

I'm sorry to hear you have Aps and that you think your son does too. A lot of us have similar worries.

Type symptoms olympics in search box above, will take you to a couple of blogs suzipawz posted, where lots of members have listed our symptoms. Is a good source of info, it also shows the dark sense of humour some of us sludge bloods have.

Another great source of info is the Hughes syndrome foundation website on hughes-syndrome.org

I hope you both feeling ok today.

Take care gentle hugs love sheena xxxxxx

[Hidden]

Thankfully I was diagnosed before I had a clot or a stroke.....MD's believed I had Lyme Disease . My symptoms----"foggy brain"; poor concentration; fatigue.to the point I could not function for several months and stayed in bed;

malaise ( felt like I was "drunk" and had the flu at the same time....horrible); somewhat dizzy....sooo grateful I am doing well

[SueLovett]

MS symptoms are common amongst Hughes patients.

I was being investigated for MS before correct diagnosis

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