Rheumatologist appointment advice - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Rheumatologist appointment advice

dexters profile image
2 Replies

Hi everyone newly diagnosed (have a read of my journey) seeing a Rheumy. not APS specialist, on Mon. next week any tips on what questions to ask her

Regards Dexters

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dexters
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MaryF profile image
MaryFAdministrator

Hi, I would write out your medical history to date and any symptoms in bullet points, adding in any relatives with autoimmune disease including Thyroid. Also show them this website: ghic.world/ Clearly if they turn out to be good on this disease, we would want to know about them as the list is increasing regarding doctors who understand this disease. Also add to your bullet points, any significant questions you do want answered. If they can't help you, you need to be asked to be referred further away to one off our list, under pinned posts over on the right hand side of the forum. Ask them to test your B12, folate and ferritin and also your Thyroid, but i know you may do your own tests also, which will be more accurate, Thyroid wise. MaryF

dexters profile image
dexters in reply to MaryF

HI Mary F

Thanks for your wise words , i will let you know how i get on.

Regards Dexters

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