Sticky Blood-Hughes Syndrome Support

The GHIC Website

The GHIC Website

Its taken us a while to get here but I hope its been worth the wait.

We are a small, all volunteer Charity so are proud of our achievements and look forward to many more.

Please support us if you can. Thank you!

ghic.world/

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All good things come to those that wait - thank you all so much x

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Great news, well done x

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What a good day, today has been! MaryF

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You guys... I just want to squeeze you to pieces! Take you to dinner! Oh my goodness...

when words fail.

I’m hooking my docs up with the website for sure.

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DINNER, can you here the stampede of my feet! MaryF

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By the way- it’s beautiful. Design is tied together across the board. Well laid out- “seemingly “ simplicity never comes without extreme precision. When you think actually how much targeted info is packed into that- it’s amazing. The transitions are smooth and very logical, and concise.

It delivers exactly what it states it will deliver. It follows its “ table of contents” very well.

It’s very well done!

I see the use of “Pantone continuity- “and true professional elements. I’m really truly impressed. Small little charity. Hmmmpfff. You can do my website any day!

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CONGRATULATIONS to this Website.

Beautiful, clear and it has got everything. We (Administrators ) are not needed anymore. I can not find the Scandinavian countries though.

Also Specialists from the US with telephonnumbers.

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Kerstin - please send me any Drs you feel should be in that list via PM. Prof Hughes is writing to all of them personally to invite them. We already have some more for the UK but we will add them in batches.

We will always need you and the other Admins- couldn't manage without you!! X

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I tried to go on the site and sign up, bit it says page not available. Well done all of you. You all should be very proud.

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Bernie we had issues at the weekend with the pop up but all fixed now. When did you have a problem? Please let me know if its still not loading.

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Kerstin, do you still have Dr. Riitta ‘s L. information from Helsinki? Helsinki University Thrombosis Department.

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I do not know what you are talking of. I know nothing from Finland.

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I was in the mountains on a skiing holiday when I contacted you- I may have had very poor internet WiFi connection. Maybe it never went through. It was for Leenaliina in Finland. I have a dear friend in Finland who is a GP. She had emailed me the head of Helsinki University Thrombosis/ coagulation Department. If I remember her name is Dr/ Professor Riitta Lassila.

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It’s wonderful good looking, precise, informative. Wonderful job all...thank you

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Why when i go on the site and i go down to white boxes on the hs part and i click on say-seronegative it flashes up BUt won't stay long enough to even begin to read it . and they all actually do this what am i doing wrong or is this a problem with site ??

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Hi Jim - what are you viewing it on, mobile, tablet or laptop?

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jetjetjet Ive tested and double tested and it all seems to be working our end. You can access the Hughes pages from the actual menu or from clicking on the Hughes button on the Home page. Once there scroll down to the Organ by Organ section and then hit the brain icon. When that box comes up it should stay there until you either come out of it by hitting the cross in the top right hand corner, or you go to the next box (organ) by clicking in the dark grey bottom banner where it says "next item" Lungs. Then so on and so forth.

Ive tried it on all different mediums, phone, my really old iPad, a laptop and a desk top. All ok. Tell me whats happening with you so we can see if we can help.

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I have kept up trying and finally the screen stuttered and then it worked - i need it to work as i am starting with some new medical people and the old site is no longer - I was explaining to one just yesterday and i couldn't remember the site - we were discussing seronegative and even in the medical field she hadn't heard of it so NOW i am comfortable of giving her the site Thanks A for the help -- i guess all you had to do is wave your magic wand. i will wait and try again

Thanks again C & J

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Darn i have tried everything and it won't work - it must be my comp. i guess

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Oh my goodness, the site is a wealth of information. I will be doing a lot of reading here. Thank you and your team so much for putting this together. Very well done.

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Just catching up with the past few days posts and have seen this.

What a great looking, easy to navigate site. Plus all the work that must have gone into putting all this, the various experts, etc, etc, together. All involved should be very proud of what has been achieved. It's fantastic!

A big thank you!!

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APS not - it is working and it is most likely me { don't laugh to loud !!! Ha Ha Ha } the site is nicely set up -and looks great -- Thanks to all whom have worked on it - C & J

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The IT have corrected this. It was not you just some bad code!

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Thank You Lynn for telling me that -- You are good for my EGO ha ha -- You make me " SMILE " not many do in my life Ha Ha

THANK YOU FOR JUST BEING YOU !!!!

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