Many of you on here will have read about the failed attempt to anticoagulate me with warfarin, I had a bad reaction to it & had to be hospitalised. I had a similar reaction to heparin so I am now back on clopidogrel & aspirin.
I was being seen at Guys Hospital by Dr D'Cruz but when I returned for my follow up appointment I was seen by a junior Dr who was treating me as if I was a new patient.
Due to my appointment being repeatedly cancelled it had been re-booked for the wrong consultant.......I was not pleased after a 4hr journey with an elderly hospital transport driver who had difficulty finding the hospital.
I was supposed to be seeing Dr D'Cruz to discuss scans & tests previously carried out. I had waited a year to be seen by him & came away very disappointed. I decided to find a consultant nearer home in Bath I thought it to be a good move because one of the admins on here attends the same hospital for his Aps.
I have various complicated health issues & had attended the hospital in the past under a different consultant the one the admin is seeing. This consultant failed to point out my constant positive APs results.
Why would a consultant do such a thing when I were clearly positive is beyond me. it was I that spotted the positive results & pointed them out to the specialist nurse who agreed I should see Professor Hughes she told me she used to work with him.
I went to see Professor Hughes at London Bridge but this action wouldn't have been needed had I have known of the results of my bloods taken at Bath. At the time I had no knowledge of Aps until coming on healthunlocked.
I now have a new consultant a colleague of my previous consultant who I saw Just after the New Year. On advice of other's I had a few bullet points to discuss & I took a couple of letters with me from Dr D'Cruz & Professor Hughes for the consultant to read, he was running hour & a half late.
I wasn't examined, there wasn't even an examination couch ! I tried desperately to explain what happened whilst being on anticoagulants & went on to explained I had another TIA & had suffered serious chest pain. I also told him since that episode I am now getting pain in my chest when I lay on my left side which is worrying me.
He didn't listen to my heart he just kept referring to my Fibromyalgia & proceeded to refer me to a FM coping clinic he finished off by saying I will review you in a years time ! I tried to protest but that was the end of the consultation.
When I arrived home I were angry I had just been given another year's sentence of further misery. I searched the net for the Consultants email address albeit his university address of which I were not aware of at the time.
I sent a him an email saying I felt intimidated during consultation due to his clinic running late. I went on to ask why he had focused on my FM when it is not a life threatening condition but Aps is.........surprise wakey wakey Mr Consultant. I didn't stop there I went on to ask why he hadn't addressed my chest pain & was he aware it could be a side effect of this life threatening condition ?
I reminded him my care & well being would only be as good as the consultant treating me............I had nothing to loose, I received a response. He has made me an urgent referral to a cardiologist & rightly so. His consultation letter arrived yesterday his review date is still for a years time ! Since when have follow up appointments been yearly ?