Sticky Blood-Hughes Syndrome Support

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I hope this isn’t true. Does anyone know how to tell if information is true? How we can find out? Thanks, Cindy

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Hi Cindy,

I hope it's not true think of all the people that have had this vaccine over the years.

Thanks for posting it was an interesting read.

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Unfortunately this is very often the case with readings of this sort there are no actual facts to back it up.

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Yes I read it quickly. I have often wondered personally if something triggered an already underlying condition a long time back.


I have also wondered and it most certainly makes us question the cause and what triggered it.

Tetanus injections were often given when I were a youngster.

Its most certainly food for thought.

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I think so too. I was fanatical about physical training, food etc....I wondered quite often if it was too extreme and got APS going.....I was 22 then & had lived that way for 5-7 years prior. Great achievement not so much if it started the whole thing off though.


I can put your mind at rest on that a youngster I didn't watch what I ate and physical fitness was not my thing..........I have Aps. :-(

Take care and I hope you have a lovely Xmas.

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Thank you for clearing this up, 😁. Most helpful response, ty


I’ve read this on two other occasions and checked it out. It’s an article that is dated 2013 and is trying to sell you a book. If you read the sources at the bottom of the article it sounds good but they aren’t all used in the actual article so making themselves sound better. I managed to go back to the source documents on two of the quotes and far from saying that the vaccine was the problem they said that it was probably the infection that started APS.

I remain open minded about whether vaccines could trigger APS in some people, I don’t think it causes APS. I certainly don’t think this article is reliable at all.


I think we do not know yet the secret of how we get APS. The trigger could be an operation or a severe blood-trauma of some sort. There can be several causes probably.

Kerstin in Stockholm

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Never, ever rely on the internet.

This website is not regulated by any medical association. Anyone can write whatever they like without any consequences!

Brian Shilhavy – Brian Shilhavy is the Managing Editor and Founder of Health Impact News. He has a BA in Bible and Greek from Moody Bible Institute, and an MA in Applied Linguistics from Northeastern Illinois University.

"Mainstream media today receives significant advertising revenue from the pharmaceutical industry, and seldom does investigative reporting on issues challenging the monopoly on medicine that is controlled by government agencies such as the FDA, CDC, NIH, and others."

Are you going to rely on an organisation that is quasi-religious and who is into conspiracy theories?

This is like the terrible MMR hoax, by a British doctor, Andrew Wakefield, who maliciously claimed MMR was linked to Autism. It was published in the BMJ but it was a lie because they fraudulently wrote their own data.If this can happen in medical journals,why are you relying on a website that has no medical authority.

Are you are referring to: Tetanus Vaccine Causes a New Disease Known as Antiphospholipid Syndrome

Really? They know something more than Dr Graham RV Hughes, who identified it in the 1980s? The doctor after whom this syndrome is named?

The sources they list are valid sources, but they do not corroborate what they are saying.

They then refer to: Read the full article here:

PAGE NOT FOUND was the result.

Stop reading these scare stories and ASK YOU OWN DOCTOR!

With good wishes,



IMO the doctors here in the US don’t know much that’s why I asked on here. Thank you for your reply, Cindy

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Hi Ros

It was a discussion between members nothing more really.

I do give credibility to some natural natural methods as mentioned and have had positive experience for specific things however.

I have asked my doctors several times in the past about triggers etc and as you say I generally get a ‘wouldn’t think so’ or more likely a ‘we don’t know’ because they don’t at this point! I agree too many conspiracy theories about & very easy to get caught up in it!



Dr Andrew Wakefield (as he was at the time) was one of a panel of 16 people who put there name to the article apparently.

Why was he picked out in particular? Why have all the other panel members not been publically 'shamed'?

He was looking into gastroenterological issues and seemed to have found greater issues in autistic children.

When the gut microbiome is compromised prior to vaccination a poor outcome from the vaccine seemed more likely.

He is now an active speaker in the vaccine debates.

Interestingly there are people on forums suggesting that if attention is paid to dietary issues with autistic individuals and the gut microbiome is healed then then the severity of the autism is lessened.

We possibly need to pay MUCH greater attention to the gut microbiome which may actually be the centre of our immune systems.

Modern food does much to inflict damage and if there are also potential links to vaccines causing damage then our current medical model possibly needs a rethink.

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1. BMJ declares MMR study “an elaborate fraud” - Autism claims likened to “Piltdown Man” hoax

(Published 26 June 2012)

The BMJ declared the 1998 Lancet paper that implied a link between the MMR vaccine and autism “an elaborate fraud.”

Dr Fiona Godlee, BMJ Editor in Chief says “the MMR scare was based not on bad science but on a deliberate fraud” and that such “clear evidence of falsification of data should now close the door on this damaging vaccine scare.”

She is struck by a comparison between researcher Andrew Wakefield’s fraud and Piltdown man, that great paleontological hoax that led people to believe for 40 years that the missing link between man and ape had been found.

She also questions the veracity of Wakefield’s other publications and calls for an investigation “to decide whether any others should be retracted.”

A series of three articles starting this week reveal the true extent of the scam behind the scare. The series is based on interviews, documents and data, collected during seven years of inquiries by award-winning investigative journalist Brian Deer.

Thanks to the recent publication of the General Medical Council’s six million word transcript, the BMJ was able to peer-review and check Deer’s findings and confirm extensive falsification in the Lancet paper.

In an editorial, Dr Godlee, together with deputy BMJ editor Jane Smith, and leading paediatrician and associate BMJ editor Harvey Marcovitch, conclude that there is “no doubt” that it was Wakefield who perpetrated this fraud. They say: “A great deal of thought and effort must have gone into drafting the paper to achieve the results he wanted: the discrepancies all led in one direction; misreporting was gross.”

Yet he has repeatedly denied doing anything wrong at all, they add. “Instead, although now disgraced and stripped of his clinical and academic credentials, he continues to push his views. Meanwhile the damage to public health continues.”

“Science is based on trust,” concludes Dr Godlee. “Such a breach of trust is deeply shocking. And even though almost certainly rare on this scale, it raises important questions about how this could happen, what could have been done to uncover it earlier, what further inquiry is now needed, and what can be done to prevent something like this happening again.”

2. How the case against the MMR vaccine was fixed

BMJ 2011; 342 doi: (Published 06 January 2011)

Cite this as: BMJ 2011;342:c5347

In the first part of a special BMJ series, Brian Deer exposes the bogus data behind claims that launched a worldwide scare over the measles, mumps, and rubella vaccine, and reveals how the appearance of a link with autism was manufactured at a London medical school

3. Wakefield’s article linking MMR vaccine and autism was fraudulent

BMJ 2011; 342 doi: (Published 06 January 2011)

Cite this as: BMJ 2011;342:c7452

4. How the vaccine crisis was meant to make money

BMJ 2011; 342 doi: (Published 11 January 2011)

Cite this as: BMJ 2011;342:c5258

In the second part of a special BMJ series, Brian Deer reveals a secret scheme to raise huge sums from a campaign, launched at a London medical school, that claimed links between MMR, autism, and bowel disease

5. The Lancet’s two days to bury bad news

BMJ 2011; 342 doi: (Published 18 January 2011)

Cite this as: BMJ 2011;342:c7001

In the third part of a special BMJ series, Brian Deer reveals what happened when he reported misconduct in Andrew Wakefield’s MMR research to the medical journal that published it

Dr Andrew Wakefield was one of the lead researchers & worked at the Royal Free Hospital. He was not "picked out" but was responsible for the fraud. Not only did Wakefield "doctor the data", he was motivated by money and put the lives of children and adults at risk. Many parents refused to vaccinate their children. He moved to the US.


This story could run for a while yet

Life story of controversial vaccine campaigner Andrew Wakefield heading to big screen | Film | The Guardian


Didn't know that! Making a money making film about an unethical former doctor sums up a society that values money over doing what is right. He misled medical doctors and put at risk those who are vulnerable!

Wishing you and everyone a happy and healthy and peaceful 2018!

May our doctors find better treatment for all.


Maybe you should reserve some judgement until you have had a chance to avail yourself of some more facts.

Vaccinations if they are taken should surely be based on informed consent.

Surely there is no harm in people ensuring they are informed. If the case for vaccines stands up to interrogation the masses will rush forward to take every shot offered.

One should not fear information.

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I think the UK doctors have demonstrated conclusively the fraudulent behaviour of Andrew Wakefield.

I reserved judgment until the UK doctors investigated Wakefield and found he had doctored his data.

I did not make up the conclusions that were published in the British Journal of Medicine and The Lancet. Some of the evidence on which my judgment is based, is posted above.

The Lancet withdrew Wakefield's paper and the editor of the BMJ, asked for Wakefield's other papers be investigated. These editors are medical doctors.

British doctors are not stripped of their qualifications by the British Medical Association, without judgement that Wakefield's evidence was fraudulent.

You have the right to dismiss the evidence of many doctors against Andrew Wakefield. This is your choice.

I have not seen any evidence that their conclusions, are incorrect. This is not recent, but dates from 2011. Wakefield's guilt is based on the way in which he changed the data to support his position. This behaviour is amoral.

It is because I am not a medical doctor that my judgement is based on the conclusions of those medical doctors and scientists, investigating Andrew Wakefield. Unless there is evidence that says otherwise, my judgment is on the side of the UK doctors.

I have not mentioned individual consent should be denied. This is separate. I am writing about Andrew Wakefield's fraudulent data which helped people to determine whether to vaccinate. I am referring to the worrying epidemics that occurred because parents were scared to vaccinate their child. I am talking about someone in a position of trust, who abused that trust, as pointed out by Dr Fiona Godlee of the BMJ.

Yet Another Measles Outbreak Traces Directly To Antivaccine Autism Panic:

"History repeats itself for the nth time in a decade as yet another community suffers through a measles outbreak that traces directly to antivaccine fervor and thoroughly debunked claims that vaccines cause autism.


There is nevertheless more to this story. For those who may be interested in hearing another perspective they make follow this link and hear from the horses mouth, so to speak.

Dr. Wakefield Sues Brian Deer and BMJ's Fiona Godlee - AGE OF AUTISM

And did you also know that the BMJs learning division receives funding from pharma.


Hi overnighthearingloss,

I would like to hear you tell a little about yourself and how you feel today with your APS. Do you have a Specialist and have you started anticoagulation? How does it go?

Where are you from? England?

Kerstin in Stockholm


I am English and on warfarin treatment. I am aware of the food interactions with warfarin but have determined from the start of treatment that my warfarin needs to be diet dependant rather than cutting back my diet to serve warfarin. My poor renal function points me to warfarin rather than the newer drugs. I pace myself with all activities. I do sometimes still get severe migraines and vertigo that can last days but they may be due to overlapping conditions rather than APS alone.

I am hopefully recovering from a bad cold atm, much like many others. I search the internet to supplement or potentially provide more effective treatments than i am currently receiving.

I am a person who is naturally drug adverse and would prefer cures to ongoing treatment. Big pharma is dragging its heels so I am searching for myself.


Hope you listen to our fellow members on here who speak from own experience. We are listening to eachother and learning.

I am quite sure that we must thin our blood at a high level and keep the INR steady, I hope you have got a therapeutic level high enough to help you with the neurological symptoms.

Also so many Doctors do not know this illness as it is really very tricky and may attack so many parts of our body. Therefor we must listen to eachother and try to learn for ourselves as much as we can and most important try to find a Specialist who really knows APS from having patients with autoimmun illlnesses and who wants to help us. He must also know that some of those autoimmun illnesses go hand in hand like cousins and to distinguish between them.

Thanks for your answer. Keep well!

Kerstin in Stockholm


lupus-support1 i think this is what you were looking for

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Thank you. I was too tired to trawl through the messages.


In my opinion. A solid medical perspective to hear on these issues comes from Yehuda Schonfield out of Isreal. Uni Tel Aviv. He has a keen, ongoing studies interest in immunizations and its possible association with how the body may or may not react . He in no way means to say we should not be immunized.

He is a world leading expert in rheumatology, with a special focus on lupus and APS.

He has a lecture on line discussing the aforementioned topic, but in general terms. It’s the most qualified I believe you will find.

I have a special interest in this because our son has mild Asperger’s syndrome. Highly gifted, ( IQ in genius range) but none the less on the autism spectrum. ( depending on how it’s classified that particular year... )

Interestingly Professor Hughes notes a correlation between mothers with Hughes Syndrome and children on the Autism spectrum.

And now of course... he has been diagnosed with Hughes syndrome also. ( His first auto immune disease was ulcerative colitis/ chrones in Kindergarten- first bleed. )

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Thank you Kelly, interesting. Cindy


You are quite right about Prof. Schonfield - I seem to recall we had a discussion on the "worms" he is researching! I will defer until the excretions are replicated into medication. Outside of Prof. Hughes, he is the expert and researcher at the Tel Hashomer Hospital, in Tel Aviv.

I am sorry to read your son has autoimmune conditions. Although it is not fully genetic as say with genetic conditions, there are families where autoimmunity does seem to occur more often. Prof Hughes seems to think that my mother's mother, died from lupus nephritis. She died when my mother was 10 years old and had been ill throughout her married life. My mother has Sjogren's, underactive thyroid, a mild form of SLE & has had a stroke in the eye. Fortunately, my twins do not have any sign of autoimmune conditions. Their hay-fever is via their father!

The problem with correlation is that it is confused with causation. Nevertheless, it is interesting the correlation to which you refer. There is a great deal they do not understand regarding autism and Asperger's. I hope his treatment is making his life more comfortable.


Correlation Vs causation. Yes. This causes much confusion.

I struggle with concept this myself, and being a humanities major doesn’t help at all.

I feel one of the great fortunes in life if one is so lucky is the opportunity to continue our educations through our children.

Our daughter is currently in her third year as a research scientist at Princeton and drills this into me. Correlation/ causation relationship in all its intricacies.

Those WORMS tho!

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We do not know what the trigger is for APS and it is likely to be different for many people depending on their genetic make up. We are all predisposed to many many conditions but they don't know why some people go on to develop diseases and some don't.

Infection is a known trigger and many of us relate to symptoms starting after bad flu or glandular fever. This is not new.

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The way I understand your article APsnotFab is it may have something to do with it but the antibobody would have to be lying dormant. Is this how you understood it? Thanks


The way I understand it is that you need to first have a genetic predisposition. Then you need a trigger or triggers. For some that may be a vaccine, IF they are at that time, perhaps, already in a situation where their immune systems were already under some sort of stress and this would tip it over the edge. For others like myself, Im sure it was glandular fever followed by a very bad bout of the asian flu in the 1969 pandemic.

I don't think two people are necessarily going to react in the same way because if they did, with the millions of vaccines that are given, they would soon see a pattern. So its like an individual perfect storm.

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Thank you, makes it very simple. Cindy

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For years the doctors could not give me a diagnosis and concluded it was glandular fever. It wasn't because it didn't burn itself out. I was out of the country and many volunteers were going down with strep throat. This triggered by first major SLE flare, although no one knew it was SLE. There s a suggestion, perhaps more strongly, that strep throat can trigger SLE. It was not the cause of it, but a trigger.I have had SLE most of my life, certainly from puberty and perhaps even younger.


I also had strep throat, many episodes leading them to remove my tonsils when I was 19. First miscarriage a year later!


Very sorry to read this!


Thanks everybody for responding


FYI Cindy, it’s called the “ two hit “ theory, what Lynn is talking about. professor Hughes talks about this, so my Rheumatologist in San Antonio quotes him often - this “ two hit “ theory.


Myself nor family with history of autoimmune illness!

I’m just “lucky”!

If it’s going to happen, here I am🤨


Di novum mutation- a guess as good as any.


So KellyInTexas it’s anybodys guess”?


In your case. If you have no prior genetic family history- then a di Novum mutation and a second hit somewhere as far as current theories run I’d say.


As mentioned by KellyinTexas Y Shoenfield is highly respected in this field.

I have been following vaccine debates and am no longer someone that believes they are necessarily the best route for health. In my opinion a strong immune system is the best route.

But people with auto immune diagnosises have their immune system depressed intentionally to mask the symptoms.

I came across Dr Brooke Goldner online who had lupus nephritis and APS in her teenage years and early twenties and now is apparently free of both through dietary approaches.

I am hoping that her story can be replicated

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Hi Overnighthearingloss,

Dr Brook Goldner (online) says she had APS in her early twenties and she is now free from APS through dietary approaches. I doubt it was APS.

Dietary approaches may help a lot and makes you feel good but we know that if you are once diagnosed with APS you will have it for llife and it will never go away.

Best wishes from Kerstin in Stockholm


Don't immediately doubt it. Research her a bit more. Her treatment protocol at the time was certainly in line with someone who was suffering from such conditions.

We are regularly told there is no cure causing us to not look further.

Dr Terry Wahls managed to turn around her own advanced MS by following dietary approaches after she got to the stage where she was effectively told there was no hope.

There are numerous people suggesting that gene expressions in people can be turned on or off, contributing to or combating conditions.

Google Bill Clinton Caudwell Esselstyn.

Seek and you will find as I believe it says somewhere in the bible.

The converse of that is also true.

Big pharma is only too glad to keep providing the populace with medicines. What a goldmine that is. Wish I had thought of it.

In a technological age do you really think that all medical people ate totally stumped for ideas of how disease starts or how to cure it.

I guess it's comfortable to believe that it's all just bad luck though.


I am not a Doctor and you are not alone with this idea that APS will go away.

There are actually a lot of Doctors that when they cannot see see clots and autoantibodies they think our illness does not excist and have never even excisted perhaps.

We have microclots (some of us like me) and they are not seen on a Scan and our antibodies disappear for some time and return again after some period (not me).

BUT if the patient should stop anticoagulation the symptoms could return and then we know that the APS is not gone. With a tragic experience.

We should not eat drugs we do not need but I am very happy that I finally tried Warfarin and feel so much better today.

It is too difficult for me to discuss in English so I stop now. Very interesting though.


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Sorry Lure, I didn't mean to attack you.

I would also like to know more about Dr Brooke Goldners apparent cure. Something in particular that interests me is that she says she was almost at dialysis at one point. This resonates with me as I have also been very close to dialysis but managed to just stay clear of it.

Modern medicine suggests there is no way out. But is that true?

Is it coincidental that I have not ended in dialysis or is there something I have done to prevent it? Possibly through diet.

I would like to find out what her current renal function is like and just how far things can be reined back.

I haven't yet come across anything that touches on that.

But it seems the crux of the dietary approach she advocates is to have a nutrient dense low inflammatory diet. She shuns omega 6's (inflammatory), found in animal products including dairy and oils. And ramps up omega 3 fats (anti inflammatory), via flax and chia and avocados. Also drinking lots of water. Processed foods are also likely to contain high amounts of omega 6 and are therefore on the inflammatory list.

If this is useful to people with auto immune conditions then maybe the medical profession should be advertising it more.

I think a lot can be learned from further reading. The current dietary guidelines are definitely not failproof.


Why do you think that I think you attack me? No way!!

I like discussions but this is not my language. It is Swedish. Easier for me. I saw Bill Clinton you mentioned. He looked fantastic!

Also my daughters and grandchildren in Thailand on Skype wishing me a Happy New Year.

I read a lot in English as I want to learn as much as possible. I am sure how we live and what we eat can change our lives a lot. But I think we must think for ourselves as there are so much different info from so many parts and places and it also has to do with our symptoms. We must find out for ourselves. I take Warfarin so I must try to eat about the same things each day. For me that is crucial if I want to keep my INR at a stable range.

Now I am going away to celebrate the new Year of 2018.




I was not planning on posting in this thread anymore as it is now quite old but I have just come across something that may be relevant with regards to the tetanus vaccine in particular. I haven't researched further on this atm but when you consider that Hughes patients have issues with pregnancy I thought it was worth posting the link.

The bit in question starts at about 24 minutes into the video


I appreciate your putting this on here, thank you,Cindy

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Has anyone been following Dr Suzanne Humphries, if interested google her and her death threats, very interesting.


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