High diastolic pressure?

[Saralmac]

Has anyone dealt with high diastolic blood pressure? I'm really battling with keeping mine under 100. Just had bloodwork and ecg, blood all normal except low WBC, which I've had a long time. I'm usually on the lower end of blood pressure, even during pregnancy so this is odd. Been going on at least 3 months now. Just waiting for ecg results.

[HollyHeski Administrator]

Hi, its good that your having your heart checked, when they did bloods did they check thyroid, colesteral, kidney etc? These can also cause high diastolic.

[MaryF Administrator in reply to HollyHeski]

I agree with what you are being told here, and also have you been checked out for POTs? ncbi.nlm.nih.gov/pmc/articl...

Mary F

[Saralmac in reply to HollyHeski]

Yup, they checked all that and everything came back normal, just waiting for the ecg results.

[Lure2]

It is a symptom of APS with high bloodpressure. I know you live in Canada and last time you were still on Warfarin but no selftesting.

I have had very high bloodpressure during the years and had an Endochrine-professor who dealt especially with the bloodpressure. I could a couple of times be (with 3 bloodpressuredrugs) on 220/140 and had heart-issues also. I was then at A &E.

You must get it down in some way. We must have a Specialist who knows these things can be typical for some of us with APS, like Pulmonell hypertension and high bloodpressure and heart-issues and PEs. I also have micro-emboli and they are usually not seen on an ordinary MRI etc as they are so very tiny but do harm all the same.

For me the most important thing was that I was properly anticoagulated on a high INR up to 4.0. I know you have an INR between 2.0 - 3.0 and that must be too low for you.

Ask them to do an Ecocardiography with doppler on your lung and heart.

Do you have a machine at home for the bloodpressure like I still have?

Have you a Specialist who can give you the right bloodpressure-drugs and understand that these things has to do with your autoimmun illness?

It can be difficult to get the bloodpressure down but with me it was all about that I had to be properly anticoagulated at a stable and high INR.

Like prof Hughes has said so many times that he is surprised how many symptoms that disappear with a adequate anticoagulation!

Best wishes from Kerstin in Stockholm

[Saralmac in reply to Lure2]

My inr has been quite high for the past two months, aiming for 3-4. Anything higher and I'm having bleeding and bruising issues. My doctor is going to refer me to a specialist and will start in blood pressure meds. She said because it was just diastolic pressure that's high it is harder to bring down. I'm usually 130 over 90-100 ish.

[Tinythepanda]

I have recently had very high blood pressure. More recently the highest was 185/134. My INR is in range and I'm otherwise quite well at the moment.

I was prescribed BP lowering meds and now BP is around 150/90 which is still not ideal but better than it was. My Rhuemy initially ordered a renal angiogram as renal stenosis can be linked to APS. Thankfully they decided it was too invasive and I have had a MRA instead to see if there is signs of stenosis.

It may be an idea to discuss at your next appointment whether your kidneys are working as they should be.

[Lure2 in reply to Tinythepanda]

Hi Tinythepanda,

What INR are you put on and can you stay stable on it?

Best wishes from Kerstin in Stockholm

[Tinythepanda in reply to Lure2]

My range is 3-4 and I self test

[Lure2 in reply to Tinythepanda]

So you are stable?

Kerstin

[Tinythepanda in reply to Lure2]

Yes I’m pretty well controlled.

[MrsMouseSJ]

Interesting post as my systolic blood pressure has recently risen, for no apparent reason. Bloods and ecg all normal, bar - like you - low WBC. It's very frustrating not knowing why, so you have my every sympathy. Hope you will post again and let us know how things progress.

[Saralmac]

So far everything has come back normal. I'm going to try to eat healthier and excercise more and if no change in 3 months then on to meds.

[Lure2]

It is very good to eat healthy (especially the SAME healthy things every day as you are on Warfarin) and to exercise every day but the most important thing for you would be to start bloodpressure drugs as soon as possible and see to it that you have a stable and well working INR. I think you should have an INR over at least 3.5. Have they checked if you also have pulmonell hypertension?

Kerstin in Stockholm