Hydroxychloroquine: New report... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Hydroxychloroquine

HollyHeski profile image
HollyHeskiAdministrator
11 Replies

New report regarding hydroxychloroquine. I have been on this for over 10 years, originally prescribed for sjrogrens but now learning also good for APS & Lupus patients.

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HollyHeski profile image
HollyHeski
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MaryF profile image
MaryFAdministrator

I am hearing that people with Hughes Syndrome/APS are prescribed it more regularly now, not just for the fatigue issues, but also as it does seem to help with clotting issues, although more studies will be done, I have heard of this being described as anecdotally, with regard to thinning the blood, from a medical perspective. MaryF

daisyd profile image
daisyd

It is a life saver drug for me, my balance has improved and I don't fall over like I used to, or bump into things it's brilliant

Lure2 profile image
Lure2

Hi Holly,

Have I misunderstood that Hydroxycloroquine is another name for Plaquenil or .......?

Kerstin

Yllek profile image
Yllek in reply to Lure2

Yes they are the same thing Kerstin. I say I take hydroxychloroquine and my haematologist calls it plaquenil.

Kelly x

Kerlampert profile image
Kerlampert in reply to Lure2

Yes, its the generic for Plaquenil.

Kerlampert profile image
Kerlampert

It shows effects on TF...tissue factor. So, I will stay on it long enough to measure any differences in myself...its now been 5 months since I started.

Kerstin from Hawaii

Lure2 profile image
Lure2 in reply to Kerlampert

Hallo Kerstin!

Which is the best one?

Kerstin in Stockholm

HollyHeski profile image
HollyHeskiAdministrator in reply to Lure2

Plaquenil/hydroxychloroquine are the same drug, the best brand for us is from Zentiva. There are other suppliers but some people report nasty side effects.

Lure2 profile image
Lure2 in reply to HollyHeski

Thanks Kelly! That is what I have neard before but forgotten. Zentiva is the name.

Kerstin

Kerlampert profile image
Kerlampert in reply to Lure2

I don't know, but I will look into it over the next few months.

Kerstin

Wittycjt profile image
Wittycjt

Hmm

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Professor Graham Hughes' Monthly Blog - December 2018

https://ghic.world/self-help/blog/december-2018?fbclid=IwAR1S81Vb3VlWFKHxMOCFkRrxyERegZJA7VUz3_egWP5