Anticardiolipins false positive - Hughes Syndrome A...

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Anticardiolipins false positive

Theomom profile image
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Hello everyone, I had been tested for APS after pre eclampsia and death of my son. No history of miscarriage. The first test done 15 days after my c section was positive for anticardiolipins (48). They repeated the tests 4 months after, came back at 1.2 so strong negative. All other tests are negative.

I am pregnant again, they put me on aspirin low dose 100mg but no heparin shots.I am very worried they are wrong :( my hematologist said the first blood test was just too close from pre eclampsia so not accurate. She also said that going from 48 to 1.2 in 12weeks is too fast for someone with APS. What do you think? I am so worried

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Theomom
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Wittycjt profile image
Wittycjt

So sorry at the death of your son, that's terrible. I hope you are receiving some grieving counseling. I pray this pregnancy will give you a healthy baby.

I say you wait another couple of weeks and get tested again if nothing else.

I don't know if just being positive for anticardiolipins(aCL) means you have APS. I'm sure others as Hidden who know more will be along soon.

Theomom profile image
Theomom

Thank you so much! It's a very early pregnancy, they are not concerned by other problems than pre eclampsia (no miscarriage history and no blood clot history). I have asked for a meeting with the team (knidney specialist, ob gyn and hematologist) but they all agree that going from 48 to 1.2 in such a short time (3months) is a result that shows an absence of APS and cannot be discussed. For them I maybe had an infection that's why I had anti cardiolipins. They also said that I have never had other antibodies so a single positive not persistent in time is not APS. Thank you very much for your kind words, I'm calm now and I will to relax.. it is so difficult after all I've been throught. By the way, I am from Brussels Belgium.

MaryF profile image
MaryFAdministrator in reply to Theomom

I hope everything goes really well for you, you will find this forum very useful and the members on here are very supportive. MaryF

Theomom profile image
Theomom

Thank you for all replies ! They did a second blood test on my request and it is still totally negative,no APS.

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