Livedo reticularous: Just wondering if... - Hughes Syndrome A...

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Livedo reticularous

Saralmac profile image
10 Replies

Just wondering if this looks like livedo reticularous? Just developed it in my ankle, started as small spot and spread to both ankles and along my feet.

Ok, I can't figure out how to add photo but I have very fine blue or purple blood vessels, or that's what I think they are.

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Saralmac profile image
Saralmac
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10 Replies
MaryF profile image
MaryFAdministrator

Hi, hard to see without the photograph, but please keep the photograph, as a good idea to show your consultant/GP. MaryF

Saralmac profile image
Saralmac in reply to MaryF

I'll work on the photo. Rash isn't going anywhere, just spreading.

MaryF profile image
MaryFAdministrator in reply to Saralmac

If this is a new situation, please do check in with your GP or a medical professional. MaryF

Saralmac profile image
Saralmac in reply to MaryF

Ah ha! I did manage to add the picture. Now I'm. It so sure it is.

Lure2 profile image
Lure2

Hi again,

Have you now found the book "Sticky Blood Explained" by kay Thackray we talked of 2 months ago?

I do not remember if you have got a Specialist which you should have of course. i know you are on Warfarin (or LMW Heparin today) and test every week with the therapeutic range 2.0 - 3.0 which most certainly is a too low No of INR for you. I think you said you had a stroke.

I remember you said the LMW Heparin was very expensive. Livedo Reticularis is said to be a sign of Hughes syndrome/APS. I had it before i was properly anticoagulated.

Probably the sign will go away when you see your Specialist. Talk to your Doctor and tell him what you have seen and also ask if your anticoagulation is sufficient.

Difficult to say when no picture is shown.

Kerstin in Stockholm

Saralmac profile image
Saralmac in reply to Lure2

I haven't had time to look for the book yet, been so busy! I'm going to look into that. Yes, I have specialist here in Canada. I'm going in for a follow up soon. I'm going to see my gp next week, she is on vacation right now. I've managed at add the picture, now I'm not so sure it is. Thanks!

Saralmac profile image
Saralmac

Now that I've looked at more pictures it's just broken blood vessels. I have a bunch up my legs now too.

charlieab profile image
charlieab

Hi Saralmac

Hope you doing OK. Ive become a bit obessessed recently with livedo on account of not knowing what could be causing mine and I have looked at (far too) many photos of livedo on the internet. Ive no medical training at all. But to me what I can see in the pic you posted does not look at all like livedo.

Ive no idea how to get a photo from my phone to the computer and thence to the website, and so cant upload a pic of mine (whcih might be just as well, as my legs dont look in their prime anymore!). But my possible livedo is a kind of purple-red lacy kind of blotchy pattern, rather than consisting of blood vessels. Also it kind of appears and partially disappears depending on whether my legs are raised.

Hope this helps.

Lure2 profile image
Lure2

I agree with the others. It does not look like Livedo Reticularis at all.

Fantastic that you have found a Specialist in Canada! Well done!

Good Luck at the next follow up.

Kerstin

Ray46 profile image
Ray46

Not a doctor, but not livedo. Spider veins / telangiectasias, like varicose veins but smaller.

Lots of folk get them, more common as we age, ankle is common location. Having said that, it is in effect a vascular disorder so could be related to APS - but it is so common it would be difficult to tell.

For what it's worth, I have these on my heels / ankles, and the when the haematologist was fishing for livedo (as I figured out later) she wasn't interested - I ended up showing her all the various "rashes" I had (heat rash, liver spots, seb keratosis...) and all she could say was "no, a rash but not like that". It would be a lot easier if they just showed you a picture of livedo and asked "have you ever had that", but they don't. Now I know _why_ they don't do it that way and the reasons are good, but these days when you are one minute and a phone away from a full set of pictures I question whether the logic still applies. Eventually the diagnostic process will have to adapt to the presence of Dr Google.

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