Update and help: Hello. I am Scott and... - Hughes Syndrome A...

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Update and help

Scottc profile image
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Hello. I am Scott and have posted on the site before. I was diagnosed with Hughes and fibromyalgia. I live in the US and the knowlegde about the disease isn't like it is overseas.

I am on warafin, plaquenil, alprazolan and recently ambien. The dr lowered my plaquenil and my lymph nodes started to swell then got what I think is a kidney infection and had blood in my urine. It seems if I get any infections my body go crazy. My questions

1) does a bacteria that infection cause the Hughes to act up and cause the blood to thicken

2) I see a onacoligist/hemotologist the following week so any advise would be appreciated. My rheumatologist have mention something about heparin. I think when I get sick my blood thickens, could this be true or is it the infection and fever. I don't have a self tester so I don't know.

3) Also they say I have IBS but I don't get an upset stomach but it like my stomach is having spasms causing swelling in my stomach and gas.

Any opinion would be appreciated. I have gained so much knowlegde from here already.

Thanks

Scott

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Scottc
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Manofmendip profile image
Manofmendip

Hi

I totally agree with what my colleague, APsnotFab has suggested.

Dave

Scottc profile image
Scottc in reply to Manofmendip

Thank you

HollyHeski profile image
HollyHeskiAdministrator

Hi, yes our blood thickens and flares up when we have viral or bacterial infections, I have Aps and sjrogens, your symptoms sound familiar. Totally agree with Apsnotfab's answer, couldnt be worded better. Good advice to follow...

Scottc profile image
Scottc in reply to HollyHeski

Thank you for your help, glad I not crazy that this is a system.

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