Sticky Blood-Hughes Syndrome Support
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Would You Like To Help Research For Hughes Syndrome?

Here is a link to a Patient Engagement Survey that you may like to take part in. The people behind it have received a large grant to help conduct research into our disease.

This is a quick survey so only takes a few minutes to answer the questions.

surveymonkey.co.uk/r/Q5VRKV8

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I tried to click on the link in their inquest but it did not happen anything. Perhaps not for Swedish sufferers.

Kerstin

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I can't get onto it either even after downloading the requested app.

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I'll look into it as had no issues on twitter yesterday.

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Ok try the new link above it should work!

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Done now 👍(I've cheated and done it twice as I got one from the APS charity yesterday as well, hasn't realised both were same at first !)

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Great. MaryF x

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Completed, thanks.

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Next?

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Done didn't have any problems accessing the survey and it only took a few minutes to complete

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Come on now....

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Is this still in process? What/ where can we read results?

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