Organ donation and giving blood - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,335 members10,532 posts

Organ donation and giving blood

7 Replies

Am I right in thinking that I won't be able to give blood or donate organs because I have APS and possible lupus SLE?

7 Replies
MaryF profile image
MaryFAdministrator

Here is what I have found for you:

lupus.org.uk/online-help/un...

lupus.org.uk/online-help/un...

MaryF

in reply to MaryF

Thankyou xx

in reply to MaryF

They were so helpful, Thankyou

Hughes-Comrade profile image
Hughes-Comrade

I have APS. I'm really wondering if I now have Lupus. I know that is rare to have it secondary, but I have many symptoms.

I asked my Hema/Onc about donating blood and not a good idea. I asked about my kidneys and he said yes they wash out pretty good.

Ray46 profile image
Ray46 in reply to Hughes-Comrade

Hmmm, with you on not donating blood (after all we have a disease of the blood with aetiology still not completely known), not sure about donating kidneys though - when you read up on APS Nephropathy and the type of damage coupled with the difficulty identifying it (without a biopsy which is very dangerous if it's there) I am not sure it's a good idea. Same goes for any organ - again, we have a disease of the blood, which may affect any organ, and which is still not completely known.

in reply to Ray46

Good point

Hughes-Comrade profile image
Hughes-Comrade in reply to Ray46

I understood that if your kidneys are in good shape then they can be cleansed out. That was the simple explanation. I'm sure the qualification is much more detailed.

You may also like...

Giving Blood

temporarily to give blood?  4.  If yes to questions 1 and 3, does it matter if you give whole blood...

Sticky Blood & 5 Recurrent Miscarriages. Should I Give Up?

do D&C anymore. I am thinking of giving up? As I was on such a high dose of blood thinners and...

Having to give up work.

to be financially crippled as I have some debt and no savings. I have my tribunal for pip next...

Best way to give birth?

day. Im looking for some advice on the best way to give birth to our child, is a C Section or...

Legs giving out on me, Why?

Hello. I am new to this support group, but have been diagnosed with APAS for the past 12 years. I...