heavy waves and pain in my brain when... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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heavy waves and pain in my brain when ears tinnitus

ninawa profile image
5 Replies

i start having tinnitus for many years ago! i enjoyed it at the beginning,it feels like under the water!!!as years goes i began to feel my head getting heavy waves starting from ears and waving all over my head as small circle to bigger and bigger! i could feel my brain getting also heavy and i can"t describe that pain but it is so uncomfortable.i have to leave everything until it is away!

i"am new here could anyone help?

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ninawa profile image
ninawa
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5 Replies
Ozchick profile image
Ozchick

Is the tinnitus due to Hughes Syndrome? Or is it getting worse without a high enough INR?

ninawa profile image
ninawa in reply to Ozchick

i will ask my doctor to have INR n see if that's the cause but one time i had waves n i check my blood pressure it was 16 so i am really worry!

Lure2 profile image
Lure2

When were you diagnosed with Hughes Syndrome (APS)? Long ago? Other symptoms?

Best wishes from Kerstin in Stockholm

MaryF profile image
MaryFAdministrator

Hi, does you doctor think you have Hughes Syndrome/APS and where are you located? MaryF

Manofmendip profile image
Manofmendip

As my colleagues have asked you, do you have a diagnosis of APS/Hughes Syndrome? This is a forum for patients suffering from that condition, not a general medical forum.

Dave

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