Eye issues : I have APS. Diagnosed 1... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,351 members10,539 posts

Eye issues

Juejue11 profile image
8 Replies

I have APS. Diagnosed 11 years ago. Has it many years before. 2 strokes. Heart surgery. Inr issues like many. On Coumadin and target inr of 4.1 and in anti platelets. Other various issues including thyroid to name but one.

Lately I have been having issues with vision. Mani ly my left eye, which is my stroke side. Getting double vision or the crosseyed feeling isn't new to me. What is weird is I have had stacked double vision. Two images on top of each other, instead of the side by side or offset somewhat. It cam last a few mins to an entire day and resets itself overnight it seems.

Does anyone else have this and k is what causes it, is it a cause for concern? I tend to blow things off. I'd i go the Drs I feel I am either feel like I am fobbed off or end up with a new issue that requires more pills forever, so I avoid it unless I really have to go

Two weeks ago I picked up yer another virus, flu type symptoms, sent me into a flare. Now my stomach is bloating like I am pregnant again, and it comes out of nowhere. This morning was a "skinny" morning where I was feeling a little slimmer. A few hours later I look like a bloated beached whale with an 8 month preggo belly which isn't being hidden under my large hoodie.

Anyone else have issues like this? Also a small cut I got at the weekend just started bleeding again out of nowhere. Ugh. I think it's time for my pills again. Maybe I will feel less stoned, feeling that way for no reason is horrible

Written by
Juejue11 profile image
Juejue11
To view profiles and participate in discussions please or .
Read more about...
8 Replies
HollyHeski profile image
HollyHeskiAdministrator

Do you know what? We just get in control & our body says HA HA -SURPRISE lets give you something else! All related, lets just take day by day.

Dot69 profile image
Dot69 in reply to HollyHeski

You're so right, from feeling quite normal (whatever that is😊) for a few days whoosh! Bad head-hurt(not an ache with me) can last 4 days Heavy leg, light sensitive(more than normal) sooooo tired, the list goes on, so I deal with "stuff" best I can then when I feel great😏 I'm up and running 🏃

Juejue11 profile image
Juejue11

Thank you for the reply. The only thing I ate yesterday was a grilled chicken salad. So no gluten involved.

My tummy has been an awful issue for a couple of years. First they said it was my ibs, then it was colitis, then IBD. Then they decided it was my lady bits. One day at work I almost collapsed from intense pain that made me shake and I did cry. I was admitted to hospital and found out I had one of my ovaries heamorahge and I was losing quite a bit of blood. They got me off my thinners, into lovenox and 4 days later I had a total complete hysterectomy. My belly stopped swelling from pooch to nine months in less than 60 seconds. Now it's swelling again. And feeling absolutely crap. I never leave work or call in. I left at lunchtime and came home to lie down. I almost walked into a wall at work because I didn't realise I was so close, and yes I was watching where I was going, so happy I put my hand out lol

daisyd profile image
daisyd

I would go to the Doctors this am, take someone with you ? What is your INR you need to have it checked today if not already done so ? Antiplatlets as well, if it were me I would question it

Don't be fobbed off we really have to look after ourselves as in my experience not every Doctor does

Lure2 profile image
Lure2

Hi,

I agree with daisyd!

Also is your INR taken often enough and is it stable so you know where you are reg anticoagulation? We may have bleeds also but rare though.

Best wishes from Kerstin in Stockholm

GinaD profile image
GinaD

Before I went GF I had severe bloating spells and my weight could vassilate by 5 pounds within24 hours. Since GF? All gone. --except on those occasions when i accidentally ingest some gluten, in which case a glass of kefir helps tremendously. Do you have avcess tokefir? It is a great probiotic.

Lure2 profile image
Lure2 in reply to GinaD

I have looked it up because I am trying new bacterias. I eat yougurt with accidophilus and bifidus-bacteria. You have to try or even mix them sometimes but take one at a time so you notice how you feel.

We have it in Stockholm and I am going to try it later.

Kerstin

GinaD profile image
GinaD

if you have the same flavor sselection we have , I reccomend the peach.

You may also like...

Recent APS diagnosis and eye issues

haemorrhages in eyeball itself. Vision issues carried on intermittently and feelings of...

Lung Issues with APS?

Hi, Does anyone have trouble breathing with APS? When I first had the double vision and was...

Plaquenil and effects on the eyes

and outcome with me? I have recently begun having problems with my eyes. I have been on Plaquenil...

Blood in white of eye

its more like a pooling of blood my INR is in range, I have had a headache on the same side to the...

Anyone only have issues on 1 side of their body?

might still be to blame Anyone else have nerve issues on just one side? I’m certainly not looking...