As you are aware, the Hughes Syndrome Foundation Charity (HSF) Forum has been administrated by three Administrators MaryF (Mary), APSnotFab (Lynn) and Manofmendip (Dave) for a number of years very successfully. The Charity has been extremely happy with their work and has let them run the online Forum.
As the HSF Charity also has links to other social media and online channels, it has been decided that the three Administrators will take over the total control and running of this online Forum from Wednesday 29th June 2016.
The HSF charity’s main aims are to provide support for patients and their families, to raise awareness of APS/Hughes syndrome, as well as educating the medical profession and funding research. It welcomes the essential work of the HealthUnlocked Forum and other social media groups and online support channels, since it gives the charity an invaluable platform and outlet to keep patients informed of its activities and initiatives.
Mary, Lynn and Dave are extremely excited to announce that the new Forum will be called Sticky Blood-Hughes Syndrome Support.
We want to assure you that nothing on the online Forum will change other than the name (and a new look), as it will still come under the umbrella of HealthUnlocked and will have their full IT support.
The name change is fully supported by all concerned and both the Forum and the HSF Charity will continue to work together in the future as always, in order to raise the very important issues and awareness about this condition Hughes Syndrome/ Antiphospholipid Syndrome, that we all have. This will include a link to the HSF website and Facebook page from the Forum and the HSF website will carry a link to this Forum.
We look forward to your continued support and to seeing you on the Forum as usual.
Kate, Mary, Lynn and Dave