Tired and joint pain : How long before... - Hughes Syndrome A...

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Tired and joint pain

stargazer5761 profile image
6 Replies

How long before you start to feel the benefit of hydroxy chloroquine. I've been on 200 for about 8 weeks and don't feel any better at all. I'm also taking iron . Vitamin d and rivaloxaban .just so exhausted most of the time .and tribe joint pain

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stargazer5761
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6 Replies
Ozchick profile image
Ozchick

I was told about 3 months-but, for me, I didn't feel i got any extra benefit and was happy to take it off my already large drug list! I did stick out the 12 weeks and doubled the dosage (after no side effects) at about 4 weeks.

Peanut profile image
Peanut

Hi there

It took me at least three months to notice a difference and six months to feel full benefit. After that, if I missed a dose I felt rough for quite a while afterwards, until my levels really built up and now, many years later, if I accidentally miss a dose it makes no difference.

I hope it starts helping you soon.

MaryF profile image
MaryFAdministrator

Hi, I can't take Plaquenil, I am terribly allergic, along with most other drugs... however my daughter is on it, she noticed a difference in month three, it is a slow one to come up to speed, be patient a little longer, all the best to you. MaryF

stargazer5761 profile image
stargazer5761

Thanks four replies ill just keep taking them for a few more months then and hopefully they should kick in .. I was hoping this was some sort off wonder drug and stop the aches and pains and most of all help with the fatigue . Had all my bloods done and all levels have come back up ... Vitamin d iron ferritin and t 3 and t 4

Lure2 profile image
Lure2

Better to stay on them for 3 - 6 months then like Peanut says. I have never used it.

Anyway it sounds like some sort of wonder-drug for some of us. I have already found my wonder-drug when I started Warfarin.

Best wishes that it will help you!

Kerstin in Stockholm

stargazer5761 profile image
stargazer5761

Thanks everyone .will let you know how it goes in a few more months time

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