I've just seen my Gp who is the only Doctor I see who seems to have any sense and be able to do joined up thinking. He's looked at all the blood tests the Rheumatologist took about 6 weeks ago and put it together with all my other recent symptoms and now believes I have Polycythaemia. The Rheumatologist gave me a follow up appointment for June. I'm pretty fed up that others have dismissed a lot of my symptoms as they make no sense. I get breathless easily yet my heart and lungs are fine, I sweat profusely all the time, mainly my face and head, I'm lightheaded and nauseous, I have an extremely painful burning knee, I have high BP and High haemoglobin. I'm already on Warfarin, and have had 2 strokes, plus I have to take a medication to prevent dysfunctional uterine bleeding which can cause strokes and heart attacks. To me that has always been preferable to bleeding to death due to Hypovolemic shock as I've almost done twice in the past. So now I have a Haematology referral to go with all the others. I've been thinking for a while that maybe my Inr should be higher because of the Norethisterone and it's side effects of clotting but it's a fine line. They tried to take me off it in the past but nothing else worked and Hypovolemic shock can itself cause heart attacks and stroke, not to mention cause problems for months after. Funny no one twigged when I lost 4 pints of blood yet had a Hgb level of 14 afterwards. They wanted to do a hysterectomy to rectify the problem they caused with hrt but quickly changed their mind when I had my second stroke 2 weeks before the hysterectomy was due and at that point I hadn't been diagnosed with Aps. I wasn't diagnosed till a year later and Hysterectomy has never been mentioned again. I was actually pretty symptom free of Aps until earlier this year but have gradually developed more and more symptoms over the past 9 months or so, The high Hgb I think has been present for some time, probably a decade as with all the bleeding I endured through years of Dysfunctional uterine bleeding my Hgb levels were never low.
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