Is scratching related to APS? - Hughes Syndrome A...

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Is scratching related to APS?

dea29 profile image
18 Replies

Hi! I feel scratching(my legs and lower back) for three months. Is it related with APS(lupus anticoagulant)? Best wishes to all...

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dea29 profile image
dea29
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18 Replies
scooterwoman profile image
scooterwoman

Hi i get the itching. .,it drives me nuts.You havent changed any of your meds have you?as some meds do cause it...tramadol affects me like that.....but i itch like mad when i am flairing .I mentioned it to my rheumatologist last year who said that some people can itch during a flair.7

i hope that helps......happy itching 😆

take care Vicky

dea29 profile image
dea29 in reply to scooterwoman

Thanks for your reply scooterwoman. I went to dermatologist and she gave me loratadin for 10 days(for allergy), but i am not sure that scratching is result from allergy. I havent changed any of my meds before scratching starts.

Best wishes...

MaryF profile image
MaryFAdministrator in reply to dea29

If you possibly can buy some natural aloe vera gel, and keep it in the fridge, apply when you are itchy, it does help a lot. MaryF

dea29 profile image
dea29 in reply to MaryF

Thanks a lot MaryF. I will try. Best wishes to you..

dea29 profile image
dea29

Thanks for your advice APsnotFab. Best wishes for you...

jetjetjet profile image
jetjetjet

Some things as simple as changing Bath soap -laundry detergent etc. or change of meds - i get this and i have to go on a steroid cream , very expensive and i can only stay on it 14 days , and Dc. get pissie if i use it with out telling him and then when i do - he says use the cream HA HA

I believe the APS can and does cause it and another big culprit is NERVES and they can effect anything in my book .

I am hyper { have been all my life } so far anyways :-) .

I also have HUGE problem with feet -- I am going threw it as we speak -- very painful and seeing a new podiatrist- been on prescription band aids for the last week{ not working but i have another week to go}

is really interfering with my walking and swimming for my Fatty liver problem. so skin all over can be effected !!

C & J

dea29 profile image
dea29 in reply to jetjetjet

Hi jetjetjet! Its obviously that nerves are related with skin. I am sorry for your problem with your feet. And about bath soap and laundry detergent i use only baby natural product.

Best wishes to you...

beccafullcircle profile image
beccafullcircle in reply to jetjetjet

May I ask about the fatty liver please? Reason is I had a fatty unkown cycst on mine years ago lots of pain. Is this related to APS?

jetjetjet profile image
jetjetjet in reply to beccafullcircle

i started showing fatty liver after 2009 when all my clotting was discovered-- they have no cause - i am considered NASH-when i bring up the APS they are nervous about listing it as such--I am high stage 3

stage 4 starts at 17.5 and my last fibro scan @ 100 % accuracy was 16 .7

I can't take any of the meds for it so my walking and swimming is all i can do-unfortunately i am having such a problem with my feet it is making it tough . i have till July

i have asked about the possibilities of the fat showing on Fibro could actually be clotts but that would take a Doppler ultra sound of which my Dc. didn't want to do because she said that treatment would be the same as the 2 anti's i am taking now . i disagree. That Dc. left FEB. first and i start with a new one{I AM NOT EXCITED ABOUT STARTING WITH NEW DC>!!!} i just got her trained in the last 4 years. anything else i can talk with you about please PM me if you would

Thanks Becca ----------------------------------- C & J

jetjetjet profile image
jetjetjet

SORRY

anniea profile image
anniea

I have found that when I am on a higher dose of Warfarin I itch more.

dea29 profile image
dea29 in reply to anniea

Thanks for your replay anniea. Best wishes to you...

diane1428 profile image
diane1428

I must admit before I was diagnosed I had terrible itching on legs and sometimes arms and also middle lower back. Once I was put on warfarin and my INR got higher it seemed to go away What are your INRs at the moment. As long as mine stays 4.0 and above im not too bad.

dea29 profile image
dea29 in reply to diane1428

Thanks for your replay diane1428. Best wishes to you...

daisyd profile image
daisyd

Hate to mention this but I had a very itchy back, before problems due to APS, since being on Warfarin, no longer a problem may not have been connected but always wondered

dea29 profile image
dea29 in reply to daisyd

Thanks for your replay daisyd. Best wishes to you...

kellybates1973 profile image
kellybates1973

I had that and it was a blood clot in the artery leading to my kidney

dea29 profile image
dea29 in reply to kellybates1973

Thanks for your replay kellybates1973. I am so sorry. I hope that you are ok now and also i hope that my scratching is not related with some serious problem.

Best wishes to you...

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