hair thinning

[sarahlou1801]

hi I have recently noticed that my hair has got really thin especially round my hair line...always had really thick hair and its thinned so much people are starting to notice......I was diagnosed with aps in august 2013 I had high anticardiolipin antibodies present in my blood test. I take 75 mg of aspirin a day

[MaryF Administrator]

Hi firstly things to get your doctor to check, your iron, b and D also to do a Thyroid panel, all these can contribute to hair thinning. It is easy for any of them to slip out of kilter and things can creep up in an insidious manner. MaryF

[sarahlou1801 in reply to MaryF]

thankyou mary had a full blood count done too weeks ago and iron levels all was normal. will go back to gp but my gp is completely useless when it comes to my condition.

[Lure2 in reply to sarahlou1801]

Have you tried an APS-doctor?

Kerstin in Stockholm

[MaryF Administrator in reply to sarahlou1801]

and please be aware that in the main Thyroid tests are pretty useless, and if your Thyroid is out, it will cause hair loss. MaryF

[sarahlou1801]

thanks again mary....no aps dr my gp wont refer me to anyone

[Lure2 in reply to sarahlou1801]

Hi Sarahlou 1801,

I have read some of your previous posts here. You want to have a baby and have had losses. So sorry for that!

I think you should change GP if he wont refer you to another doctor.You have surely heard of how difficult it can be to have an APS-doctor that knows this illness.

Several members have suggested that you ought to see Raj Rai at St Marys in London.

They have suggested you need a Specialist in Pregnancey and APS. It sounds wise to me especially if you GP is not the doctor that it is easy to have a conversation with. I understand that you feel not so very happy at the moment. Not a wonder I should say.

Take care and I know you will find a doctor that is nice and kind and knows what to do.

Best wishes from Kerstin in Stockholm

[sarahlou1801]

my eyebrows seem fine just my hair that seems really thin lately and gets greasy really really quickly

[Lori559]

My daughter was just diagnosed with hasimotos thyroid which only showed up in her antibodies. A lot of her hair had fallen out by the hair line I kept after her to have it checked, finally she did and is now being treated. I would like to know if anyone knows if the hair will grow back once your being treated? Thank you.

[mevangeline]

I've had APS since 1992. I also have problems with my hair thinning. I tried acupuncture to increase the blood flow. It seemed to help a little.

[Hidden]

I suggest that you google "Medications that cause hair loss"; the list is quite long.

[MagicalHare]

hi , the warfarin made my hair really thin which was a pain because iv never had thick hair and cant afford to lose anymore! also it made my hair go very dry , wirey and even curly/frizzy. I had to just go with the flow and wear it curly , it looked awful if i tried my straighteners, there was nothing to it anyway. I am a trained hairdresser and my hairdresser told me they call it "warfarin hair" some clients have to stop having perms and things done because the hair changes on it that much.

Iv had to change my colours , and stop having bleach highlights (foils) on top of my tint . It was just killing it. i thought i just had to live with it and it was the price i had to pay for being well(no more mini strokes).

I mentioned it to my Hematologist just as an after thought and so glad i did , he said no i don't have to live with it he will try me on a warfarin alternative.

So i have been on SINTHROME now for a year and a half and about 3 months ago i started to see a difference with my hair getting back to how it was , i knew it wouldnt be an overnight difference because the damage had been done and i had to wait for the new hair to grow through. The sinthrome is keeping me well and my hair is better than on the warfarin.

i have protein C deficiency and historical APS and small hole in heart.

( 1 miscarriage, 1 stillborn daughter , lifelong migraine and two mini strokes ) .

Hope you get a good outcome Sarahlou,

lv

Claire x

[sarahlou1801]

Hi claire thanks for the response...so sorry to hear of your losses and illnesses.....I will def have to change my gp I think as everyone keeps advising me. I too suffer with migraine. and also rashes, insomnia and problems with joints. breast and ovarian cysts too ...I will get a diff dr and speak to them about the range of problems I have including the hair thinning as my current gp thinks im just over reacting all the time and says my aps wouldnt cause these problems. thanks everyone for all your replies and advice always appreciated

[Lure2]

If you change Doctor as you write, see to it that you get a Specialist!! That is important.

Good luck!

Kerstin

[sarahlou1801]

just an update...went to see a diff gp she has sent me for b12 blood test and ferritin test also dont know if either of these will show anything. sorry to say still no mention of a specialist as my aps hasnt caused me to have any blood clots or strokes apparently I say thank goodness but would be happy if I was to see a specialist to prevent this ftom occurring in the future

[louise78]

You have to insist on a referral to a aps dr, there are cross charging implications but that is not your problem! I had no miscarriages or blood clots prior referral, but was clearly unwell my first local specialist was not too clued up so I requested a specific dr to be referred to at lupus centre. I had to push to get it but got there in the end. Just as well as my new gp knows nothing about my condition!

[sarahlou1801 in reply to louise78]

Thanks Louise. I have insisted time after time at last I am under dermatology and my consultant has a good understanding of aps thank god as my gp knows nothing intact had to Google it then ask me to come back. Hoping the dermatologist will refer me now