Lifted from Hughes Syndrome Foundatio... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,351 members10,539 posts

Lifted from Hughes Syndrome Foundation charity web page. Some great news!

MaryF profile image
MaryFAdministrator
2 Replies

Good luck and thank you to our four fearless runners taking part in the Brighton Marathon this Sunday. Hope you all have a great day and run, run like the wind

2014 Brighton Marathon | Brighton Marathon 2014

We are looking for enthusiastic, energetic individuals to join Team Brighton Marathon and volunteer in 2014! Registration is now open!

BRIGHTONMARATHON.CO.UK

If any members see stuff which should be put on here, before I get a chance to catch up with it, do please send me a message so I can rectify the situation.

MaryF

Written by
MaryF profile image
MaryF
Administrator
To view profiles and participate in discussions please or .
2 Replies
YvonneW profile image
YvonneW

My son, Michael, ran his first marathon at Brighton on Sunday - for the Hughes Syndrome Foundation & in an amazing 3 hours 46 minutes and 30 seconds. We carried big banners to cheer him on and promote interest in Hughes Syndrome. They both worked well, with several people asking about it. Michael has raised £1040 so far, with more coming in.

MaryF profile image
MaryFAdministrator in reply to YvonneW

Absolutely brilliant, do load up some photos on here if you have any! MaryF

You may also like...

A post taken from Hughes Syndrome Foundation by Kate H

you who are gym bunnies or like tackling climbs, marathon, triathlons etc - good news: research has...

VIA Hughes Syndrome Foundation Charity Website/Kate.H - A QUICK VOTE may make all the difference!

you to the thoughtful member of the public who nominated our charity for a chance to win £2K in the...

Hughes Syndrome Foundation charity annual Patients' Day YouTube recording available now

Seronegative Hughes Syndrome/APS A NEW SECTION on the actual charity website.

me/sero-negative-aps.php It is clear that as members on here and beyond: This is thanks to...

VIA Hughes Syndrome Foundation - INR Debate