I have loaded this up from the Hughes Syndrome Foundation website, as I felt it was important that this is regularly posted on here. The tickets go quite quickly. APsnotFab (Lynn) and I will be there, and also TJ is planning to come along. I hope we get to meet some of you. The tickets go rather quickly, they can be purchased on line or via Kate Hindle at the charity: Also you can use the on line facility to buy them also.
Lynn and I have together managed to bring a lot of useful medical contacts along on the day, which will all help with the information sharing and networking to raise awareness of the disease.
I have attended three of these days so far, they have all been excellent and really worth attending in terms of the quality of talks and also the chance to meet other people. I will continue to post this every few days, as it is so important that information about it regularly appears for all our benefit.
I am sure after the event there will be some transcripts for those who want to be part of it, but can't come along!