Hi.Can anyone tell me the name of the... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,354 members10,542 posts

Hi.Can anyone tell me the name of the pill that seems to help with the sleeping too much problem for APS sufferers?

Zimmer profile image
8 Replies
Written by
Zimmer profile image
Zimmer
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Zimmer profile image
Zimmer

Hi.Can anyone tell me the name of the pill that seems to help with the sleeping too much problem for APS sufferers?

Tags APS The pill

Manofmendip profile image
Manofmendip

Hi

I'm not aware of any such pill.

Dave

MaryF profile image
MaryFAdministrator

I am not sure this exists, I suggest you you have APS you approach your personal medical physician for some fine tuning. Best of luck. Mary F x

tassie profile image
tassie

Might you mean Plaquenil as that is used for tiredness amongst other things but yes check with your doctor.

Carol-Barnsley profile image
Carol-Barnsley

Hi Zimmer I take Zopiclone to help me sleep, I break them in half ( easy to do ) as I find that's enough x

Lure2 profile image
Lure2

Hi Zimmer again,

How are you doing? The six weeks are four now?

I do not think there are any tablets if he is sleeping too much. When you have APS it is very easy to fall asleep. Zopiclone I have read is for if you cannot sleep.

Perhaps if you only can find an APS-doctor soon he will be much better. Fingers crossed here for you and your son.

Very best from Kerstin in Stockholm

Zimmer profile image
Zimmer in reply to Lure2

Hi Kerstin.... I have just received an appointment for the 17th Jan to see Dr Scully at UCLH London and apparently she knows everything about APS. I know she can never make him better but it would help if he were more awake and alert. Unfortunately, the strokes (TIA's etc) have started vascular dementia and I think that this has got worse during the past few weeks. I am so upset about it and wonder for how long will I actually have my son? Thanks for your kindness.................. Belle

MaryF profile image
MaryFAdministrator in reply to Zimmer

My daughter greatly improved on Plaquenil, it took time, but the results are now good! Mary F x

You may also like...