High inr

[Roxiechic]

I have apls,lupus,I'm in remission of Hodgkin lymphoma my latest inr level was 9.8 I felt really tired, my head felt like it was in a vice

[Manofmendip]

That is way too high, dangerously so. Who is managing you INR? If it is still that high you must seek medical advice immediately and avoid any injuries such as hitting your head.

Please let is know how you get on but do seek medical advice immediately please.

Dave x

[Roxiechic in reply to Manofmendip]

Yes I will back to the hospital tomorrow

[panda60 in reply to Roxiechic]

Like Dave says you must get medical advice immediately. If your INR is this high you can"t afford to wait till tomorrow.

[MaryF Administrator]

Hi there, please follow advice of Dave above, it is vital that you seek medical help and also get in contact with whoever manages your INR/clinic etc, please let us know how it goes. Mary F x

[Lure2]

I also know a lot of INR. Do follow the adwices af Dave who understands this! Immediately.

Kerstin in Sweden

[Manofmendip]

Hi Roxiechic.

Please let us all know that you are safe and well, we are worried about you.

Dave x

[Roxiechic in reply to Manofmendip]

I went to the hospital they gave me vitamin k injection to bring the inr level down and back to the hospital monday morning to get my bloods checked I will let you all know thank you

[Herb in reply to Roxiechic]

I had a high INR (8) and after they gave me the vitamin K they tested me again to the following day to check my INR. It had fell sub therapeutic so they gave me some tinzeparin.

[Manofmendip]

Hi.

That's good news. Keep us updated.

Dave x

[Hidden]

Hi Roxiechic

Glad your INR is back down and hope you start to feel better. Can I ask whether you were diagnosed with APS and lupus before your diagnosis of Hodgkins Lymphoma or afterwards? It's just that there are a number of cases where people in remission from HL develop antiphospholipid antibodies and go on to be diagnosed with APS.

[Roxiechic in reply to Hidden]

I got lupus first then Hodgkin lymphoma the APS was December last year but I know I've had APS a lot longer but because of lupus my inr levels are all over the place

[Hidden in reply to Roxiechic]

Thanks for letting me know - you poor thing! I have a friend (nothing to do with the charity or this site) who is in remission from HL and has now developed APS - apparently, it is quite common. I hope you continue in remission and get the lupus and APS under control. Are you being seen by an APS specialist? If you need one, we have a list of excellent doctors throughout the UK on the HSF website: hughes-syndrome.org/self-he...

[Roxiechic in reply to Hidden]

Thank you

[Herb]

Was it a venous sample or a fingerprick sample?

Last week my fingerprick came back 10.9 but venous sample was only 5.9.

If you had a venous sample of 98 it is a medical emergency and you should be in the hospital.

[Herb in reply to Herb]

I meant 9.8 sorry