Re my question regarding the site - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Re my question regarding the site

Jade profile image
Jade
2 Replies

Well I managed to paste my original question regarding things I would like to see changed to HU.

Well my reply was, basically "we like to hear your feedback if there is anything we can be of help with let us know" Well I did let them know in the question, just shows they took no notice and have no plans to take my idea on board.

Not impressed.

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Jade profile image
Jade
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2 Replies
Leigha profile image
Leigha

Hi Jade,

Gosh, that's unfortunate. You took the time! It seems this is how it's going to be, huh. It seems as tho' we've lost a lot of people. I know I don't check daily all the posts as I used to. Well, all the posts were in our in box. We know how it was. This is how it is. Those of us who are still here will stick it out, or not.

I still get confused. And, a lot of that is because my brain just doesn't work with this new system, and this new system is lousy. I'm here because the folks who are still here are great and there are still some good postings. But the site ..... well, it's gone from a 100 to a very, very low number.

Take good care..... Leigha

saralee profile image
saralee

I happened to read this post but I do not read them like I did; maybe one or two a week. I liked the way it was :>(

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