Does anyone else suffer from stutteri... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Does anyone else suffer from stuttering with APS?

ricky_chotai profile image
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I have recently been diaganoised with lupus and APS and last week devolped a bad stutter, and in my mind I know what I want to say struggle to get my words out.

I was only diaganoised 6 weeks ago with APS and Lupus.

I should add, I have had a CT scan and no sign of stroke or blood clots

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ricky_chotai
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stillwaiting profile image
stillwaiting

Yes I do have speech problems. Sometimes I stutter, I also slur my words a lot. I often have the word in my head that I want to say but I just can't say it. I find word recall difficult and end up describing the word by its context or the letter it starts with. I find it difficult to understand other people too - I hear all the words they say but find it difficult to make any sense of them or to process information.

This is not all the time though and since I have been on warfarin my speech is much much better to the extent that people who don't know me that well ie my hairdresser comment on how much better my speech is.

I was diagnosed in April in APS and it is still early days for me learning about my new normal and which of my symptoms are related to Hughes.

Lynn

ricky_chotai profile image
ricky_chotai

Hello I am on Warferin 3mg and my inr is around 2.3 target of 2-3

ricky_chotai profile image
ricky_chotai

Thankyou I will speak to my consultant

Salty profile image
Salty

Agree with APSnotfab. I had the same problem --stuttering--before I got on the right treatment which for me is heparin (works better for me than warfarin) and plavix.

ricky_chotai profile image
ricky_chotai

Thanks spoke to my lupus consultant and he agrees also. So adjusted my target INR range.

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