What's this please ....: I just got... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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What's this please ....

Charli84 profile image
8 Replies

I just got changed from work and have this. Sorry about my gross legs ....

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Charli84 profile image
Charli84
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8 Replies
MaryF profile image
MaryFAdministrator

Hi there this looks like Livedo Reticularis which is common with Hughes Syndrome, quite a few on here have this, but please do keep the photographs and schedule a check up in with whoever you normally see: mayoclinic.com/health/lived...

Mary F x

Manofmendip profile image
Manofmendip

Hi Charli

I agree with Mary.

Sorry you were unable to make our Bristol/Bath Group meeting on Saturday, I will be sending out an email shortly about what we decided and when our next meeting is.

Dave xx

Charli84 profile image
Charli84

Thank you, I did think it was common but just wanted to check. I have my appointment in London on July 1st so will keep the picture to show whoever I see. My skin has been very itchy the last week or so as well is this also common?

Thanks Dave ill look forward to reading it sorry again about not making it it was my hen party :) will hopefully make the next meet xx

Charli84 profile image
Charli84

Thank you, I did think it was common but just wanted to check. I have my appointment in London on July 1st so will keep the picture to show whoever I see. My skin has been very itchy the last week or so as well is this also common?

Thanks Dave ill look forward to reading it sorry again about not making it it was my hen party :) will hopefully make the next meet xx

jessielou profile image
jessielou

Hi hon

As above have said good photo to show the docs, definitely looks like livido! I itch all over too and get rashes and sores especially in the sun, taking a low dose prednisilone to calm this has worked well for me. Whether the itches are down to APS or other conditions, not sure but autoimmune conditions are there own mysteries waiting to be solved.

Gentle hugs love Sheena xxxx :-) :-) :-)

swirl profile image
swirl

As everybody say here it looks like livedo reticularis. Sometimes I have it on my feet and hands (with acrocyanosis as well). I`ll never forget when my Doc. asked me if I have painted my feet.....

Did he think that I havent anything more interesting to do than trying to simulate a death foot????? :S

lovemyheart profile image
lovemyheart

thats livedo reticularis. i get that on my hands, inside of arms and sometimes stomach

KathrynKathyKate profile image
KathrynKathyKate

Can it also look like purple spider webs?

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