Are there always cognitive problems with aps?

[KBud]

[MaryF Administrator]

Hi there, most of us appear to have some sort of cognitive problems. Perhaps comparing your list against those of others on here would be a good starting point. The likelihood of cognitive problems are high and also worthy of debate! Best of luck. Mary F

[SueLovett]

Hi,

I agree with Mary most of us have problems.

It is one of the issues that I struggle with every day

[Hidden]

It is not guaranteed that there will be cognitive problems with APS but 20% of patients will have some form of brain involvement - neurological symptoms are the most common.

Information by Prof Yeduda Shoenfeld who has kindly given his permission for our charity to reproduce his chart of symptoms on our new website

[taffydaffy]

Hi there

I have been DX with Mild Cognitive Impairment I have terrible short term memory loss I get confused I can not be left on my own as I do silly things like leave the gas on dangerouse I know I am 55 years old I think lol when I had Mri scan there was no shrinkage of my brain so thank God no dementia but they did find plaque on my brain I thought I was going mad but it's official I am sane lol

[Storky]

I also think that the degree of cognitive problems are huge. For some it is very disabling and for others it is hardly noticeable.

Since I started on my anticoagulants mine has improved significantly.

[daisyd]

I have problems mainly with my brain, which has improved a lot since being on Clexane and then Warfarin. I have no fog now. Just can't think especially when someone asks me something. I have just had tests on my nerves but I am going to ask about this on another post Karen xx

Karen xx

[lucky1]

my introduction to aps was through a massive stroke, clot and bleed, at the back of the head. That was a cognitative issue at the time.

On recovery I have no known problems and I am now 12 years post stroke.

lucky1

[tim47]

Ironically it was cognitive problems, particularly memory issues, that I had after my first double whammy of PEs in both lungs resulting in time in ITU and six weeks on a general ward, that led to a great interest in the brain. After many years study with the OU I scraped a degree in psychology and now, after multiple TIA's, I am very conscious of my own cognitive impairment. I had a job that required me to make quick decisions that could affect life and or serious injury and I didn't struggle with such decisions for many years. More recently, in the last ten years, there are times when I struggle to collect my thoughts over simple things such as how I should make a journey. I also struggle finding the right words- especially to describe stuff such as how I feel, what pain I have and where etc etc. There is no doubt that the TIA's have been largely responsible but I am convinced that Hughes per se can cause some cognitive issues.Most doctors just say, oh we are all getting old and that's part of it.

[Herb]

My cognitive probles started in my early 20's when was at university. Age has nothing to do with it. I was initally diagnosed with ulnar neuropathy due to lupus at that time and told just keep taking the tablets. The cognitive problems were dismissed as stress, migraine and low blood sugar.