How many pregnancies have you lost be... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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How many pregnancies have you lost because of APLS?

paddyandlin profile imagepaddyandlin116 Voters

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19 Replies
wojorox profile image
wojorox

6 and an ectopic pregnancy

MaryF profile image
MaryFAdministrator

But only as in 1989. I loved less than a mile from St T's.... and my sisters had already had dvt and Pe's.... so when my legs started hurting... I flew down there and clots were found.... so subsequent pregnancies as well as first one, all on fragmin.... if I had lived elsewhere, probably I would have lost lots. My sister lived out in Berkshire and lost 7! Due to where I lived at the time - down the road from St Thomas' - I lost none!

daisyd profile image
daisyd

Ist 20 weeks Placentre problems blood supply

Healthy son born 31 weeks had DVT during so started on Heparin

Eptopic pregnancy ? lucky to survive due to Hughe as tube had burst ?? slow blood loss

loss at 27 weeks and had been on heparin only. Hellp syndrome had to be induced due to my ill health

Sterilized at 23 because of this

margaretjo profile image
margaretjo

5 losses but that was before they really knew about APLS. I have 3 sons ranging in age 31, 22, and 16. I had the losses between I also had pre-eclamsia with all three and 2 premature births. I also had a hysterectomy because i was clotting so badly

viv112 profile image
viv112

After an unexplained late miscarriage at 23yrs old I had 5 children from normal healthy full term pregnancies. My Hughes diagnosis came when I was 55 after the menopause.

kateb81 profile image
kateb81

5 miscarriages for me.. 3 before the birth of our daughter and 2 since. Thankfully all of mine were before 9 weeks....

Kate xxx

kateb81 profile image
kateb81 in reply to kateb81

Make that 6 miscarriages..... grrr xxx

sharonap profile image
sharonap

My first pregancy had daughter at 33 weeks by emergency c secrtion (now 24)

7 miscarriages plus still born twins (hanna and carl) and still born boy (jack) .

After last miscarriage diagnosed with Sneddons advised not to try again too dangerous.

huds profile image
huds

Stillbirth of my precious daughter at 28 weeks and 3 m/c. However I have been blessed with 3 further children my miracle boy born after the stillbirth at 34 due to sever pre eclampsia and placenta problems I'm so lucky he is here. Then after the 3 m/c Dr K diagnosed sero-negative hughes and then I wnt on to have a boy and girl within 18 months of each other with treatment of Fragmin and Aspirin both were a bit early due to pre eclampsia but their placentas were healthy.

My heart goes out to all of you x

claireloliver profile image
claireloliver

2 before being told i had aps, a missed misc at 12 weeks and then a stillbirth

norris profile image
norris

I had 8 miscarriages between 1964 and 1972, told they were "Will of God" never had any children had hysterectomy in 1974 for endometrioses possible pre cancer.

jessielou profile image
jessielou

I had 8 miscarriages, but very fortunate to have 3 little fighters who survived my dodgy blood, plus a fantastic stepson!!

Hugs sheena xxxxxx :-)

christinebonner profile image
christinebonner

i have had 15 miscarriages from 10 weeks to 16 weeks i have one son that is now 30 and was told that i should never have had him, some one was looking after me when i was carrying him. i did not know that ihad APS till 2 years ago and when i told the doctor how many babies i have lost she knew straight away what was wrong

acer profile image
acer

3 miscarriages all at 15-16 weeks,then a healthy baby while on low dose aspirin then a premature birth at 26 weeks,sadly only lived 2 days.That was 10 years ago, only recently been diagnosed in last 6 months as previous blood tests only had 2 positive results and this time had 3 positive results for APS.

loulou08 profile image
loulou08

i have had 10 miscarriages...i have a son after my 4th miscarriage by pure miracle...my friend was a nurse and told me to take asprin and i truely believe thats how i got my son :) but no professional ever told me i had huges sydrome untill i came to austrlia wa...i feel so annoyed, but feeling postive and going to try 1 more time with help :) fingers crossed :)

hartnell5 profile image
hartnell5

hiya i have had 9 pregnancys 1miscarrige then had a healthy baby boy i have severe eclampsia was in intensive care for 5 days. then had a further 3miscarriges then had my 1st daughter i was on aspirin with her, then i had another misscarriage then i had another pregnancy without aspirin as hospital thought i would be ok then sadly i lost my daughter lauren last year at 33weeks pregnant (stillborn) in the process of being tested for aps when i found out i was pregnant again and the docs straight away put me on aspirin with constant consultant led care but im absulotley bricking it just in case it hppens again as i dont think i could handle yet another angel baby. :(

Stopped taking pregnancy test after 8 positive followed by heavy bleeding- better not to know. Not knowing has drawbacks, 3 eptopics got really late, one destroyed a tube. Last 2 eptopics dealt with quickly. Never got passed 12 weeks - try to tell myself no hart beat = no baby. Since diagnosis with Hughes, 2 miscarriages under doctors care - they said my levels were in range but I've become to stressed.

sue9469 profile image
sue9469

I had 3 miscarriages then went on to have 2 beautiful girls, I was on fragmin with both pregnancies and both went to 38 and 39 weeks, healthy babies thanks to the brilliant drs at St T's, both went well except for gestational diabetes with my 2nd, but all turned out good.

arubey profile image
arubey

1 stillbirth at 27 weeks little Carter (lovenox-too low), (lovenox, and asprin, and Plaquenil) 2 miscarriages less then 7 wks, 1 "Live birth/Miscarriage" at 17 w, lived for over an hour.