Do you suffer from ear ache caused by... - Hughes Syndrome A...
Please select one:
hi everyone, yes i do feel pressure when i fly. as a matter of fact i always have pressure in my ear. why do you want to know. not to change the subject, but, how do you deal with the fact that you have to take lovonex shots x2 or the rest of your life
One of the members suffers from the same symptoms and wanted to see who else has this and if they have found any solutions or alternatives and i think we all have to deal with the medication we take and supporting each other may help.
paddy
I have answered yes but my problems might be that I have Menieres disease.
Hi. I was also diagnosed with Menieres disease but am now sure that it is the Hughes syndrome symptoms and is not Menieres. I am on life long warfarin as I had recurrent DVT's. I have only just found out about Hughes as was just told I had 'Sticky blood'!
Better to take the shot than live with risk of another clot. I have already lost left leg & right eye to clots!!!!
Almost all my life when I fly about 3/4 times a year, half the time I get pressure nose/ear when plane is descending, giving me a violent earache. I try barley sugar and swallow often. Often within that week I end up with sinus/earache/cold. I use a natural nasal apray often, having a left d/x sinus polyp, and Sjogrens affecting many parts. Last 2 years I have had problems with my foot collapse at airports, and lately possible DVT and clots on arms and calf, now on Plavix
I used to always have the ear pain. Years ago I bought these plastic EAR PLANES ...little clear plastic ear-plug like things that you wear while flying and I have never had a problem since!!! They last forever and I have my kids use them too!
debi in FL w APS
