Introduce yourself to the community!

[SimoneHU]

Please reply with a simple "Hi" followed by something about yourself and/or your experience...

If you have a lot to share, you might want to create your own post! Click here to do that: healthunlocked.com/write/hs...

[scole7]

Hi I am Susan, I have suffered with HS for years now it comes and goes . Hate it when my skin flared up, I used to think that it was me and that it was dirty, I went completely ott but it also made my mental health worse so it was vicious circle.

[Jaycee]

Hi, I have HSV for over 40 years and no one has been able to tell me what it was until a couple of years ago, it comes and goes, I find if I am stressed it gets worse, I am so pleased to find this community, I thought I was the only one with this, I'm told it is an autoimmune disease, and is very rare,

[Jaycee]

Hi, I have has HS for about 40 years and it;s only in the last few years I have found out what this is called, I have PBC as well, and wonder if there is a connection as HS is an autoimmune as well, I am pleased to have found this site, as this seems to be a "hidden" disease, I have good periods, some as long as a year, then back it comes, but I have had no treatment for it

[Irenejudge]

FluHi I have just discovered this sight . So far found it very informative and helpful . My HS comes and goes and very painful Dr put me on a ant biotic called Flucloxacillin . I'm afraid it was a. Bad idea for me as I had a very bad reaction to the anti biotic and became quite sick .. When a should it to the surgery nurse she tells me it is often connected to diabetes which I also suffer from . Anyone else heard this ?? I was diagnosed three years ago and iwill be 80 yrs. old in January .any other oldies out there with helpful tips . The areas I have bother with are my groin and armpits Irene

[mommy483]

Hi! I am Wanda and have been taking Humira for about 8 months. I am so happy about the results, but so disturbed by the side effects! I look forward to joining in on any discussions.

[NataliaSinae]

Hi I have been living with HS for 17 years it happened immediately after I gave birth to my first born. It is the most embarrassing condition and extremely painful that you could ever have. I have Hurley stage 4 the most severe antibiotics is all they prescribe me , steroids surgeries etc. My family and I have strived in a different direction to find a cure for this and I will keep you posted. I use Hibiclens wash daily and soak in hot baths with witch hazel. Nothing helps me honestly but I continue to pray it messes with your mind the pain and agony that you endure from this. I try to keep Faith!!

[Fibroska]

Hi all, I was just wondering how you all cope on a daily basis with this?

I've had a flare up in my groin since second week in December, it starts to flare then after a few days it dies down, then a day or two later it is really painful, then another few days and it's calming down again, total roller coaster.

Unfortunately i do not have a bath anymore but shower every day using Hibiscrub or Dermol, I also relax with warm/damp facecloth on area for 5-10 mins a day; I wear loose clothing and or no underwear(feel rather dodgy when doing so). Is there anything else I should be going?

A friend of a friend, say's she normally sits about at home with just a towel covering her modesty; would you recommend this?

Thank you for your attention and remember and be kind to yourself.

Stay safe, keep well and be strong.

[worried4me5 in reply to Fibroska]

Hi, are you still on here? There doesn't seem to have been any posts in the last year on here and I'm looking for advice...