Boiling water?

[Lincolnguy]

Has anyone else been advised to boil all drinking water?

[Robear]

Only when I was first diagnosed and my CD4 count was 62. Boil all water and wash all fruit n veg in it. But not since then

[Lincolnguy in reply to Robear]

Yea I think my consultant is over cautious, she advised of booking all water to kill cryptosporidium but it seems no one else is told to do this- am I wasting my time?

[Robear in reply to Lincolnguy]

Depends on what yr blood counts are I suppose

[Lincolnguy in reply to Robear]

My cd4 is about 800

[Griffon in reply to Lincolnguy]

What !

Your CD4 count is normal , I can't imagine why you are being told to boil drinking water -- unless you are drinking out of puddles ?!

[George147]

You usually boil drinking water when your cd4 count is below 300

[247sweet]

Not since my cd4 count was really low.

[Lincolnguy]

Wonder why she advises to boil?? I guess it does no harm...!?

[Purefoy]

Never heard of it

[Lincolnguy in reply to Purefoy]

Haha yea no one else seems to be doing it! I've asked her and she insists it's a good thing....

[30yearsplus]

Oh my....😂 Boiling water? Really? She's playing with you, surely? I was just talking to my old consultant - now a good friend and source of my up to date guidance - laughed.

[Lincolnguy in reply to 30yearsplus]

And I'm also forbidden from eating runny eggs!!!

[30yearsplus in reply to Lincolnguy]

Are you allowed outside?

[Lincolnguy in reply to 30yearsplus]

Only with factor 50! Hahahah

[pauldecle Partner ForumLink]

Change your Doctor if you can...

[Lincolnguy in reply to pauldecle]

Do you think?? It kind of makes sense to me tbh....I kind of think that a good dose of sickness and diarrhoea wouldn't be good for my adherence so would sooner err on the side of caution, but I'm just interested to know that no other consultant seems to recommend the same, interesting

[Griffon in reply to Lincolnguy]

I thought that medication was not prescribed until the CD4 count had dropped to 350 or less ? Yours at 800 is in the region of normal and you aren't sick , unless there is some other condition causing a problem ?

[30yearsplus in reply to pauldecle]

Paul, well said. Isnt that just unnecessary pressure to place on someone? We all know we live with a compromised immune system and try to remain clean and avoid germs etc but isnt this just a reminder every time you use 'water' that it could make you sick and that you have HIV. Not great for a consultant - to add additional concerns me thinks 🤧😷🤒

[Lincolnguy in reply to 30yearsplus]

Hmmmm Maybe I should rethink it

[Bellsb]

Change your Dr, Quickly..

But the meds will give you a upset belly for a lot longer than expected . Keep a health diet to help.

[Lincolnguy in reply to Bellsb]

Thanks fir the comments, my consultant is very experienced however so I'm in two minds...

[SeymourGoode]

That's a new one! I've been on Triumeq for about 2 years now. No painful balls ever but the occasional bout of nausea and diarrhoea, which is easily controlled. My CD4 is 800+ So I'm healthy. Boil water? No way, I'm too busy enjoying life!

[CaveyUK]

No need to boil water or avoid runny eggs. I've no idea why your doctor has suggested that.

Do you go to a doc in Lincoln? Don't think it would be the same as mine if you do, as she has never recommended any of that - even when first diagnosed.