Worried: Hello, my husband took epclusa... - Hepatitis C Support

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Worried

Surjy profile image
13 Replies

Hello, my husband took epclusa and he was undetected but then it came back after 12 week post treatment, has anyone else experienced this, he is going to get vosevi soon, anyone experienced this?

I’m just so worried 😟 Don’t want to be a misery on here as it’s worked for so many people so don’t give up, everyone is different, I just need reassurance I think 🙏🏼

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Surjy profile image
Surjy
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13 Replies
Ttansformer profile image
Ttansformer

Hi Surijy..i can understandand you being worried ,im65 yrs old in Australia i have 13 pills to go before i am finished i probley got virus back in the 70s im geno 3 suppose to be a bit harder to.cure ,i was hoping they would check my condition after 4 weeks now iv been told i have to wait 12 weeks after i finish pills why i dont know its hard to get.information but i would.have liked to know how i was going or if epclusa was doing any mote damage to my imune system.as i have emphasemia and treatment seems to make me more exhausted plus constipation.anyway guess i just have to wait,i dont think anybody knows to much about treatment yet,it must take a while.to wipe out virus hopefully your husband will be ok iv heard it can take acouple of mths.after treatment to be cured i hope so.for you and husband im hoping i get cured as well i think alcohol is worse thing to do.good luck your not alone.

Surjy profile image
Surjy in reply to Ttansformer

Hi I’m sure it’s working so don’t worry, my husband is genotype 3 to, he had bloods done every month while on meds,epclusa has worked for so many and that is why it was a kick in the stomach for us when they told us but luckily he is starting on other tablets soon, we just hope they work and do the trick, we found out Dec 2016, don’t know when he got it but did have a blood transfusion in the 1980’s, I am clinging onto the bit of hope I’ve got left as it’s been a rough year for us, let us know how you get on, thankyou 🙏🏼

Coolninja807 profile image
Coolninja807 in reply to Surjy

I can understand how you may feel.it feels at times like what else can you do?i had genotype 1a and from what i understand there are like 6 types.here are some things you can do avoid greasey foods,and alcohol, also keep being supportive..i had kept what i was going through private..but i eventually did tell my mother and it felt better having someone i could talk too.i saw the doctor last month and he said it was cured..i still get paranoid like about germs etc.. I 'am grateful and i'll be praying it goes away..you are on the right 👣 track God bless

Surjy profile image
Surjy in reply to Coolninja807

Thankyou 🙏🏼

Coolninja807 profile image
Coolninja807 in reply to Ttansformer

The waiting is hard..it gave me alot of anxiety..hang in there ok ❤

Surjy profile image
Surjy in reply to Coolninja807

I’ve had anxiety this year, just worry about everything now so started yoga for myself as I find it hard to cope with sometimes but thankyou for your encouraging words as sometimes you can feel lonely ☹️ hopefully one day I can write a positive feedback on here 🙏🏼

Coolninja807 profile image
Coolninja807 in reply to Surjy

You will ill be waiting for that..it will go away..some strands are different and so we have to give the treatment some time..much love ok

navigatinglife profile image
navigatinglife

Hello surjy. Long time I know but not had the best of years. Touching base to see how you're both doing. Did or is the vosevi working? I really hope things are improving. Thinking of you

Surjy profile image
Surjy in reply to navigatinglife

Hi,keeping positive at the moment as the day we got the first results my husband fell ill and ended up in hospital with some kind of infection and was on three different antibiotics, was quite poorly as they thought it was sepsis, he was undetected on first bloods better than when on epclusa, but we felt good for a few hours and he fell ill, just worried that the final bloods are ok but have to wait and see, how are you doing? Have you started vosevi yet? We to haven’t had a good year, thankyou for asking, hope you have a better year 👍😊🙏🏼

navigatinglife profile image
navigatinglife in reply to Surjy

Many thanks for your message, comforting to know we're not alone. Oh no not another one. I am so fed up of getting infections. I have an appointment in 2 weeks to determine if the virus is still with me or not. I cannot imagine yet another bad year but I am hopeful for us. Kind regards to you both, 😍

Surjy profile image
Surjy in reply to navigatinglife

Wishing you all the best for your results, let me know how you get on, I just hope the antibiotics didn’t interfere with the medicine too much and we can have some good news, your immune system gets low and the infections come, take care 😊

Ttansformer profile image
Ttansformer

I really hope your husband gets better ,iv finished treatment and hhave to wait for results ,i had side effects plus 8weeks after treatment i have no energy lots of anxiety puffy legs and bloated ,i felt better before treatment i just hope its not permanent.the liver clinic i went to assured me very few side effects plus they would always be there for support they have not contacted me once no help at all i feel like a guinea pig oh i lost hearing in right ear had to take steroid med from my dr to fix it ,no im not happy .

Ttansformer profile image
Ttansformer

If had my time over I wouldn't touch it.take my chance with hcv instead .good for some but not me.good luck