Where is everyone?not many new posts t... - Hepatitis C Support

Hepatitis C Support

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Where is everyone?not many new posts today..

Coolninja807 profile image
12 Replies

Not many new posts:/

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Coolninja807 profile image
Coolninja807
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12 Replies
navigatinglife profile image
navigatinglife

Hi, guess people are busy as most on the site are clear of the virus 😁 & it's warmer now in the UK. We have to make the most of that 🌞 I would post but my story isn't great & people seem to want to read success stories I don't want to bring people down or create undue worry. I am still waiting for results 3 weeks on from end of maviret treatment in January. Unlike the rest I have some problems but I had a very high viral load & had it forever. Everybody else has cleared the virus at week 2. 😍😍

Coolninja807 profile image
Coolninja807 in reply to navigatinglife

Some days are better than others. I hope all goes well for you and that the disease will go away. I had my labs drawn recently..i wonder what it shows.altogether ive been on mavyret for 6 weeks. I have anxiety because i want the treatment to be successful. I try my best not to isolate myself because that leads to depression.they say the overall cure rate is 98%..God bless you and remember he will provide for us;)

navigatinglife profile image
navigatinglife in reply to Coolninja807

I am sure you'll be clear by now, yes almost 100% success rate. I keep myself occupied but dont spend much time at all with other people. Keeping physically busy & active distracts me and stops the worrying etc I totally understand the anxiety, I am the same. 😍

Coolninja807 profile image
Coolninja807 in reply to navigatinglife

Staying busy is key too..i make myself exercise especially walking..i dont drink either...how do you feel following treatment?

navigatinglife profile image
navigatinglife

I ve walked 5 miles today, knees a little sore ☺ I feel better after treatment but I have new issues. Think its due to weighing only 84 lbs. Sure the medication wiped me out and I now have fibrosis which I didn't have pre treatment . But if it doesn't develop into cirrhosis and I get cleared of virus I can live with that 😁

Coolninja807 profile image
Coolninja807 in reply to navigatinglife

You have a great attitude!how long did you take the medicine for hep c?i cant seem to lose a pound i weigh 153..i feel tired easy..im grateful though to have the mavyret pills..i pray to be healed..i pray you get stronger and stronger

navigatinglife profile image
navigatinglife

I took them for 8 weeks. I have genotype 3a with specific variants. such a complicated disease. No 2 people seem to be the same with symptoms and side effects. We have a protocol here that is followed strictly so we can't choose. I am hoping it was worth it. But not sure I will take on the next meds if not clear. I have always been same weight even during treatment. lucky some say but I think if I had had some beef on my bones I may have fared better 😂 so in that respect be thankful as it's a good thing 😍😍

Coolninja807 profile image
Coolninja807 in reply to navigatinglife

Yes for sure...i was told i had genotype 1a..we will both be healed ..i believe it

navigatinglife profile image
navigatinglife

Ah that's good as genotype 1a responds better to the new drugs like maviret than genotype 3a. people think 1a is the hardest but that was with old treatments. 3 is the new 1 unluckily for me 😂 numbers eh? Aww love the belief 😇

Coolninja807 profile image
Coolninja807 in reply to navigatinglife

There are soo many types of this ugly disease..my hope is that it goes away and never comes back. Im having a ultrasound this week to see how my liver looks..hopefully its ok

navigatinglife profile image
navigatinglife

Ah that's good. They haven't given me one since 12 months ago. I asked but they will give me a fibroscan in 9 months. Protocol again. I am not satisfied so am going to ask again as my liver is quite alot worse than it was. No fibrosis before my treatment now stage F3. I don't drink any alcohol at all either. approx 1 to 3% people can have this. Just my misfortune. It's the constant worry that gets us down and I know that's bad for my health. I should hopefully have blood results next week, 3 weeks waiting. But not in a hurry really. All the numbers & tests make me anxious 😓

Coolninja807 profile image
Coolninja807 in reply to navigatinglife

Me too!i had a liver ultrasound and the test was inconclusive..so im now having to go have a mri