I was diagnosed a week ago but haven't started treatment. Not sure what to expect,. Will it be a long wait? If anyone can offer advice id appreciate it.
Hi: I was diagnosed a week ago but haven... - Hepatitis C Support
Hi
5 Replies
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Hi ,
I was diagnosed end of Sept but have been sick for long time so number 1 try not to worry too much. I am still waiting to see a hepatologist, just eating well despite constant nausea and drinking lots water. some people get seen alot quicker but I have used the time to research the condition, what & how a virus works etc hep c trust is full of information. long waiting times where I live so I have no idea when and if I will be offered any.
best wishes, 😀
The doctors may hold you back for treatment as long as they can, 1st you will have scans and depending on the results they will start you on treatment. The sicker you are the quicker they may treat you. Use the emotional affect symptoms this may help you get treatment fast. It is emotional anyway for you and your family, good luck
Hi, I was diagnosed in January this year. At first I didn't know where it came from, the only thing I could think of was my tattoo I got 5 years before. Turns out I've only had hep c for 1 year, so I caught at work somehow?? (I'm an electrician, so I was very confused).
Because the specialists thought I caught it last year, they thought that I would fight the virus without medication (some people can). This meant that I had to wait for a few months and keep having blood tests to see if the virus was clearing or not.
After all that waiting, I still had it and was now just waiting for medication, this was August now. I live in the Highlands of Scotland and had to travel to Aberdeen for these appointments and we were just waiting for my local NHS and Aberdeen NHS to sort out funding. Two more months past.
Finally, it's October now and I'm on week 3 of Sofosbuvir and Ribiviron 😆
I'm genotype 2 which, in the beginning, meant that I would have had to have a course of pegylated interferon and ribaviron, yuck 😣. But, because of the wait, this new medicine sofosbuvir is available and I'm actually relieved. It's just tablets (no injections), it works in less time and the symptoms are less severe.
If I knew then what I know now, I'd know to try and stay positive. I know own sometimes it can be so difficult if you suffer from anxiety and depression like me, but it does the world of good. Get plenty of rest, your liver is trying to fight of this virus and working double time. Surround yourself with good company, family and friends. It can be quite lonely having hep c, It can be hard to speak to people about it so you keep it bottled up, not good believe me, I only wish I had joined this forum sooner, it's helped me so much. And yes, eat healthy, you need all the goodness you can get.
Hope this helps a bit
Hi I started treatment I’m now 3 week in for first week I was just my self then week 2. I went yellow and so did the whites of my eyes I drank plenty of water and after 5/6 day my skin is back to normal the only other side affect I got was very tiered and seem to sleep slot but still don’t feel like I have been to sleep at all when you do start treatment keep drinking plenty of water and each even you don’t feel like eating and you should be fine best of luck x
Hi once i informed my docter that I wanted treated I went to hospital for scan and more blood test and started treatment 3 week later I’m now 4 week in to my 12 week treatment going very well apart from week 2 started going yellow and also the whites of my eyes went yellow this was normal it was the tablets doing whot they should be doing I drank plenty of water and the yellow went after 5/6 days just very tiered all time hope this helped