HepC Chat
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New hepc treatment available on nhs in wales

My partner and i were called yesterday by his nurse asking him to come straight down to see her. She said hes gonna start his treatment now. As u can imagine he was terrified. We had been told more times than we wanted to hear how it last 6-9 months and there are awful side effects and it might not cure u and it will probably leave u with a cancer of some sort(!!!!!) Anyway after an agonizing walk to see her we finally arrive at appointment with faces as white as ghosts only to be told "dont panic, u know that £35,000 treatment that has no side affects 96% cure rate and only last 12 weeks and that u thought u wouldnt never get, well u got it!

If u got hepc and live in wales and have been putting off treatment - start it now!!!!!

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That is good news! So in early Spring..you should be feeling loads better!

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Hes been so scared what makes it worse is i gave it to him not on purpose i didnt know i had it but then i cleared it myself i was one of the lucky few but he wasnt so lucky. I just hate watching him go through this im so thankful he waited for the new treatment coz he was supposed to start last january but he was terrified - they paint a pretty bleak picture but thank god it worked out well. I cant belive hes gonna be clear by april!!!!

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What treatment plan is he on? Is he on tablets?

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He starts treatment on jan 25th. All we know is its a tablet a day and he has hepc genome 3 (?) I cant remember the name of meds but i will write it down at next appointment x

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I have just completed my 12 week course and am now six weeks past within a six week period Hep had become undetectable , if I hadn't got some little liver transplant problems I would be brilliant now !

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Please can i ask what was the treatment like. How ill does it make u?

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Have you had the twelve week treatment yet ? I had Harvonia and Ribavirin, a small bout of headaches nothing to worry about and a bit forgetful ,

That was it !!

It's now 18 weeks since and no trace , mind you the viral load was non visible during the treatment , brilliant drug . Good Luck

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hes finished his treatment and same as u all he got was headaches. within 6 weeks we knew it was working he looked so much better and now he is all clear and we are having a baby!!! this has been an amazing year!

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Since my last post , Hep C is still invisible on week 18 so I dare to say yippee!

But I've had to have surgical bile duct reconstruction to my transplant , as the original duct join failed , should have put a zipper in my chest instead of stitches !

Anyway that was done successfully but I had a collection of poison left in me which boy had me sick anyway that got drained and now I am recovering again back where I was two years ago but no Hep C to worry about attacking my new liver .

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I have just found I have hep c. My own fault . I relapsed started using after being clean for 10 years. I lost my family and home. Had to live on the streets for 2 years. It became I did not care what happened to me. I was at the lowest point of my life. Living with some of the lowest of the lowest people. I could not find a needle one night and shared with a lad I knew had it. Like I say I did not care if lived or died. Plus I had had the hep injections so thought I was immune to it. I managed to turn my life around. Found life again. Started to love myself again. So I thought I better get a check up and my bad luck for life reared its ugly head once again and yes I have infected myself with hep c. I am doctors tomorrow for check on health then going to be booked into hospital can anyone help me through what to expect. How not to pass in into anyone else. What I am going to feel. Go through. Side effects. Cure rate. Thank you in advance

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omg thats story sounds so familiar. u were an addict and when ur ill all u care about is stopping the pain and like u said u thought u were protected with vaccine. we all make mistakes but that doesnt mean u deserve whats happened to u so stop beating urself up. positive mental attitude now hun lets focus on getting better not how u got it. first question - do u live in wales, uk? treatments are different in different places x

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Does the name Maviret sound familiar to you Swalter? This is the treatment they are currently using for patients in Scotland. I think it is 12 weeks treatment so it could be this one.

Wishing you both all the best and hoping you will both be celebrating real soon.

Kind regards

Twinkling Star

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