New hepc treatment available on nhs in wales

My partner and i were called yesterday by his nurse asking him to come straight down to see her. She said hes gonna start his treatment now. As u can imagine he was terrified. We had been told more times than we wanted to hear how it last 6-9 months and there are awful side effects and it might not cure u and it will probably leave u with a cancer of some sort(!!!!!) Anyway after an agonizing walk to see her we finally arrive at appointment with faces as white as ghosts only to be told "dont panic, u know that £35,000 treatment that has no side affects 96% cure rate and only last 12 weeks and that u thought u wouldnt never get, well u got it!

If u got hepc and live in wales and have been putting off treatment - start it now!!!!!

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8 Replies

  • That is good news! So in early should be feeling loads better!

  • Hes been so scared what makes it worse is i gave it to him not on purpose i didnt know i had it but then i cleared it myself i was one of the lucky few but he wasnt so lucky. I just hate watching him go through this im so thankful he waited for the new treatment coz he was supposed to start last january but he was terrified - they paint a pretty bleak picture but thank god it worked out well. I cant belive hes gonna be clear by april!!!!

  • What treatment plan is he on? Is he on tablets?

  • He starts treatment on jan 25th. All we know is its a tablet a day and he has hepc genome 3 (?) I cant remember the name of meds but i will write it down at next appointment x

  • I have just completed my 12 week course and am now six weeks past within a six week period Hep had become undetectable , if I hadn't got some little liver transplant problems I would be brilliant now !

  • Please can i ask what was the treatment like. How ill does it make u?

  • Have you had the twelve week treatment yet ? I had Harvonia and Ribavirin, a small bout of headaches nothing to worry about and a bit forgetful ,

    That was it !!

    It's now 18 weeks since and no trace , mind you the viral load was non visible during the treatment , brilliant drug . Good Luck

  • Since my last post , Hep C is still invisible on week 18 so I dare to say yippee!

    But I've had to have surgical bile duct reconstruction to my transplant , as the original duct join failed , should have put a zipper in my chest instead of stitches !

    Anyway that was done successfully but I had a collection of poison left in me which boy had me sick anyway that got drained and now I am recovering again back where I was two years ago but no Hep C to worry about attacking my new liver .

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