I phoned the nurse regarding treatment and she put our minds at ease by telling us that the letter reads interferon free medication, which means they won’t be giving that but epclusa, feeling scared but going in on Tuesday to hopefully get treatment, hope it works as thoughts keep going through my head what if it doesn’t work, don’t say it to my husband though, glad I’ve got you lovely people to share my thoughts with,don’t know what I’d do because he doesn’t like to talk about it and I don’t bring it up with him as much but I can’t help worrying about it ☹️
Also is genotype 3 and 3a the same, anyone help?
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Surjy
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Hi 🙋great to hear you're getting treatment, I am genotype 3a also don't think much difference if any between 3 & 3a. However you are being given the best for that type. Epclusa. I didn't get that one as it's more expensive but it definitely is the best for genotype 3's. Best wishes 😍 your husband will be clear of the virus very soon! ,navs 😍
Just checked and there are 6 sub types in genotype 3. You have the best medication there is and you will be absolutely fine, especially as you have such good communication with your care team, nurse etc, xx
Yes you are correct there are 6 genotypes but each genotype has sub types. Type 3 has 6 sub types. They whittle it all down so as to pinpoint the exact variants and then treat suitably. 😍
You both have nothing to worry about as your hospital, care team are giving you the number 1 medication for all genotype 3's. And you'll get it for 12 weeks. Each individual has their own treatment plan. Epclusa & the new drugs work for all genotypes & variants. It only matters on one's own genotype, that will not change. I wish I could take your anxiety away, but once your husband shows clear at week 4 or so you will feel a lot better. 😍
I was reading about you having the same genotype and didn’t clear it, hope your on the way to clearing it now and feeling better,worried me to think that my husband has the same genotype to and if he doesn’t clear it ☹️
That's because I had maviret for only 8 weeks. Everybody else on the site has cleared the virus including maviret for 8 weeks and genotype 3. Thus my point about individual differences. Somebody has to be what they call slow, partial responder, I got unlucky with care team etc. Epclusa or 12 weeks of maviret would have been home dry. I couldn't make them give me 12 weeks even though nurse wished they could. NHS protocol. I had sky high viral load, pretty sick with lots of ailments from the hep c also & had it for a very long time. You are fortunate to be getting the best treatment & the best care. I go to hospital end of the month, so will see what awaits. x
Hope it all works out for you and you get the treatment you deserve, fingers crossed for you, you can get the medicines cheaper in India, we were going to take that route if the nhs didn’t give us treatment soon, thankyou for being so supportive xx
Thank you. I am doing everything to keep the virus low and will pursue every avenue and will, one day, be clear of it also. I still feel better than I did pre treatment, so am not getting angry or bitter as I know it's negative and that won't do me any good. I haven't got any support so I find supporting others pacifying. And distracting from thinking of my own situation. xx
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