Day 10 of maviret.: Hello people! This is... - Hepatitis C Trust

Hepatitis C Trust

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Day 10 of maviret.

Cara78 profile image
Cara78
β€’33 Replies

Hello people! This is now day 10 and my side effects of maviret are mild. I make sure I rest when my body tells me. I drink plenty of herbal teas and light snacks and am doing well. I hope you all are in good spirits and living your lifes😊 I have just done a survey online by this website (healthunlocked) I gave my email at end and they said I would receive a £10 amazon voucher, I'm still waiting for it, survey was regarding hep c.

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Cara78 profile image
Cara78
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Sillysausage234 profile image
Sillysausage234

Hi cara good to see you plodding along, I done the survey they other day and did get an email off amazon but can’t work out how to claim it so good luck with that😊x

Cara78 profile image
Cara78 in reply to Sillysausage234

Email the website and ask them. I would think it would be a code they give you. If I suss it out il let you knowπŸ‘

Sillysausage234 profile image
Sillysausage234 in reply to Cara78

There’s no code as such just a blank email saying amount Β£10.00,if you work it out let me know I get my wild bird seed off amazon so the goldfinches will be happy 😊

navigatinglife profile image
navigatinglife in reply to Sillysausage234

HiπŸ™‹ I took the survey & got the voucher. its a code in the email amazon sent. I just went to my Amazon account and added it via the gift card, redeem voucher box. Yeah I have hep c but I also have Β£10 πŸ˜‚πŸ˜‚

Sillysausage234 profile image
Sillysausage234 in reply to navigatinglife

Hi,it’s a win,win 😊I got an email but there’s no code ,I think I got burned ah well if you and cara get yours that’s good,

navigatinglife profile image
navigatinglife in reply to Sillysausage234

I replied with destructions for you πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚ just below

Cara78 profile image
Cara78 in reply to navigatinglife

That's cool! If I get my code I'm gony buy a......don't know yet I'm sure il spot something. Good to read you redeemed it😊

navigatinglife profile image
navigatinglife in reply to Sillysausage234

Just checked it's at the end of the email. Greyed out box with claim code next to it, ooh that's what I can buy. I usually buy it from home bargains, excellent πŸ˜‚πŸ˜‚πŸ¦πŸ¦πŸ¦

Cara78 profile image
Cara78

I looked at Amazon and the ways you can make a payment and there is a box you can use for codes. I'm gony email and ask😎

Rachida profile image
Rachida

Good luck and let us updated

navigatinglife profile image
navigatinglife

Yey :) glad you're doing so well. I took the survey and got the Β£10. Bonus πŸ˜‚πŸ˜‚ 😍😍😍

Sillysausage234 profile image
Sillysausage234 in reply to navigatinglife

Just got my Β£10.00, haha the email wouldn’t scroll up yesterday so I could see the code,I feel like I’m a winner in life now ille do more of them surveys bring them on I say πŸ€“

navigatinglife profile image
navigatinglife in reply to Sillysausage234

Yes, I thought about it but next few I saw I didn't get that feeling. maybe a lottery ticket πŸŽ‰πŸŽ‰ cold up here. Sawed up an old 4Γ—4 8 ft post. took a few sessions but worth it 😁πŸ’ͺπŸ’ͺπŸ˜‚πŸ˜‚

Sillysausage234 profile image
Sillysausage234 in reply to navigatinglife

Well done you I admire your spirit, do the people know they’ve got a fence post missing,I know why you go for moonlight walks now,hope it keeps you warm tonight x

Cara78 profile image
Cara78 in reply to navigatinglife

You must be fit lady...

navigatinglife profile image
navigatinglife in reply to Cara78

I try my best honey 😁 so cold the sawing warms me up and doesn't cost anything to get good arms πŸ’ͺπŸ’ͺhahaha 😍😍😍

Cara78 profile image
Cara78 in reply to navigatinglife

Good on you xxxπŸ˜ŠπŸ˜πŸ€”

Sillysausage234 profile image
Sillysausage234

Have you heard from tootsie? Hope she is ok ,she’s up by you isn’t she?

navigatinglife profile image
navigatinglife in reply to Sillysausage234

Oh I don't know. I have no idea where she's located. Cathy comes up closest to me. put my inspector gadget hat on. Maybe like the others, they feel so good so early on. At least I got close . Yeah lovely toasty warm thank you xx

Sillysausage234 profile image
Sillysausage234 in reply to navigatinglife

I think she is up by cara,her genome is1 and the meds are heavier than ours do hope she is ok the last I heard she was putting empty tablet boxes in the recycling and was off to get some photos of roe 🦌

navigatinglife profile image
navigatinglife in reply to Sillysausage234

Yes I read that. Best to keep ones head down when sick. well you can't do much else. Fortunately she is retired so hopefully is under a warm duvet. She sounded strong and determined. Sure she will post when in a better place and feeling better. All we can do is hold the fort until her return 😍

Sillysausage234 profile image
Sillysausage234

Yeah I’m sure she’ll let us see the photos soon,I do like her sense if humour at times,have you had the all clear phone call yet from your liver support nurse and did she say why she went a.w.o.l.over xmas?

navigatinglife profile image
navigatinglife in reply to Sillysausage234

She called yesterday, not all clear. Detectable but very low. Maybe others "clear " can be low viral load? we did think it may be as I was 650 when most of you guys are non detectable. So its plan b, keep it down, work it out. Still feel better than I did. Never seen any results. Hardly any contact. feel bit low obviously, don't want to rain on anyone's parade so if I go quiet you'll know why 😎😎😘😘

Sillysausage234 profile image
Sillysausage234 in reply to navigatinglife

So did she offer to sort some more mavirets out for you?obviosly could do with a couple more weeks for the stragglers to focker off

navigatinglife profile image
navigatinglife in reply to Sillysausage234

She wanted 4 more weeks for me at week 6 after looking at my wk 4 bloods but they couldn't coz hands tied by NHS. That was a hard bit in the middle but I did my best 😘

Cara78 profile image
Cara78

Feeling better is good. I can understand why you feel a bit low. Thankyou for sharing that many may not have and it means alot to me. I don't think anything is 100% and as you said you might quash it. Onwards n onwards😚😚😚

Cara78 profile image
Cara78

I don't want to rain on anyone's parade but no one knows the long term effects of this drug! I took tablets for acne years ago and the long term effects were published! The anti depressants I took for years can have long term affects. I don't think any of us will get 100 like we were like before the hep c but progress is progress isn't it?

navigatinglife profile image
navigatinglife

Thank you honey. yeah I wouldn't have posted it. Al asked. I can't ever give up as it's life, not perfect but whose is at almost 58? πŸ˜‰put my plan b in action, if it gets worse I will ask for treatment again, obviously for longer! So glad you're clear early means you're on the mend big time, all my love 😍😍

Cara78 profile image
Cara78

I havnt had any blood tests yet to determine my viral load and I'm not getting hopes up! No one has contacted me yet, when do they do it?

Sillysausage234 profile image
Sillysausage234 in reply to Cara78

I had 2+4 week ones went to outpatient clinic and then 8 then 12 week ones at the gp surgery

navigatinglife profile image
navigatinglife

You get tested wk 2. Wk 4 wk 8. Most on here report clear wk 2 or 4.and YOU WILL BE ONE OF THEM πŸ˜ƒ I agree with your other reply as regards long term effects Etc. But for most it works and they are perfectly healthy and live a full and long life πŸ’šπŸ’šπŸ’š

Cara78 profile image
Cara78 in reply to navigatinglife

Yeh but these drugs are new. So be It, I'm on it now n that's that my quality of life was poor anyway😚😚😚

navigatinglife profile image
navigatinglife in reply to Cara78

That's exactly how I felt and even now I would have done the same as I had no choice. I had nearly every symptom and suffering hep c can bring. Its done, I am still here 😁 put it behind me and hope for the best. I asked the nurse at my 1st appt what about patients 12 months on etc no answers. Scary stuff but there's a million chemicals people ingest on a daily basis and I don't so I reckon it's a balance and we'll be fine 😍😍