AT A LOSS: Hi everyone! Went back Friday... - Hepatitis C Trust

Hepatitis C Trust

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AT A LOSS

Graceallred profile image
13 Replies

Hi everyone! Went back Friday to see my GP because I just feel like I’m physically dying inside my body! Feels like theirs a huge war going on inside me. All I did was look up at my GP when she came into the room and she looked at me and said. I’m so sorry Ms Gentry Well then she asked me how I was doing on the Hep C medicine?? What meds ?? I told her that my Hep c doctor hasn’t put me on any cause I have smoked weed for along time for my health issues instead of all the pills. That he’s waiting until I have none in my system. Put it like this!!SHE WAS FIGHTING MAD!! She out right said that HES KILLING YOU MS GENTRY!! Weed has nothing to do with taking this Hep C Medicine!! She told me and showed me all my blood work. In Sept my viral load was in the 4 millions, in November it was up in the 7 million now it’s February ?? I go Monday for a new labs!! Plus I have been to this doctor my appt is for 10 in the morning but I don’t get out of office til around 8 or nine at night. Needless to say My GP called and I will have a new group of doctors now. New Hep C , new RA doc and Lupus Doc too!! I’ve been in bed for last 3 months, this diseases are actually eroding and destroying me inside and outside. I’m in all three flares have been for awhile now. Can’t take anything so I’m on 5 mg steroids, added another blood pressure med. other new meds too! I’m not tolerating the methotrexate at all. I stopped Cymbalta dr took me off it, side affects to bad. Double Zofran nausea tripled. I have Nov test and labs. So many and I still confused. Scared a little tho. GP said it’s pretty bad. She hugged me and no doc has ever done that. I think I have hope here with my GP. I’m trying to upload my labs but having trouble here Trying to stay positive. Thanks to all of you and all of your uplifting posts. I can feel really down but when I read about others on here I feel better cause others are worse and they are still smiling and helping others cope. SO THANK YOU ALL. Hope you all have a tolerable great day!!

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Graceallred
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13 Replies
Sillysausage234 profile image
Sillysausage234

Hi grace nice to hear from you,and although things are rough for you looks like your gp has got you covered now👋And youlle get that viral load down soon,and can work on the other things that are troubling you,hope things come together soon xx

Graceallred profile image
Graceallred in reply to Sillysausage234

Thanks Alan234. Yepper I think I’m covered too! I do feel Hope again at the moment. Thanks again Alan. Hope u have a great day.

Sillysausage234 profile image
Sillysausage234 in reply to Graceallred

You too grace xx🌹

Mizzkent profile image
Mizzkent

Hi babe, lovely to see you on here again sorry you have been suffering so. Things will improve now I’m sure sounds like you have a great doctor. It’s no fun when you have awful side effects of meds.And also have more than one illness.

I was surprised from the Hep c meds I usually feel side effects off things really bad but not from this treatment👌

Fingers crossed things will speed up for you now.

Lots of love Cathy xxxx

Graceallred profile image
Graceallred in reply to Mizzkent

Thank you Kayhy

navigatinglife profile image
navigatinglife

Hi Grace 🙋 my heart goes out to you. Although not there to you hold your hand sending virtual hugs 😍 So tough when one is sick & nothing being done, almost impossible to fight your corner, thank goodness you now have a GP that's listening. Took me 5 Dr's before eventually a nurse I know personally to get any help. I know how hard this is. Took 8 months to get to see specialist, you're almost there honey, stay on that bed, try to keep calm and imagine beach walks in a couple of months or so. You've done brilliantly to go on like this but action is now needed and it will come fast! Don't let that virus take over your soul 😍😍 Wish I had a magic wand 👭😍😍😍

Graceallred profile image
Graceallred in reply to navigatinglife

Thank you navigatinglife. I’m trying.

Myob67 profile image
Myob67

Hope it keeps improving. I like your GP she sounds a good one.

Good luck with everything.

Lin xxx

Graceallred profile image
Graceallred in reply to Myob67

Thank you

Sillysausage234 profile image
Sillysausage234

Have a good weekend grace xx

Sillysausage234 profile image
Sillysausage234

You ok there grace?🙋🏻‍♂️

Graceallred profile image
Graceallred in reply to Sillysausage234

Thank you Alan. I go back to dr Friday morning for my lab results. All I know is the nurse told me that if I could to come on in. And she said that the dr that’s supposed to be treating me was supposed to to have put me on meds 3 months ago. She said that doctor is killing me!! I asked her why she said that and all she said. Oops. Dr didn’t call me and go over my lab work yet?? Wow. I said No Nurse said I’m so sorry sweetie I thought she did. I am getting my results in the morning from where I had it done. I will post them on here cause I don’t know how to read them. Right at this moment. I’m really really tired and don’t take anything for pain. I can’t. They won’t let me?? Does that mean something is wrong with my liver..? I have constant pain in my left side and it stays swollen. I m going crazy cause I feel the war still going on in my whole body and I’m just so tired and stay in the bed. I just want my life back. Thank you Alan , I hope that you have a great week my friend. I’m gonna b ok. Just want to sleep. TY again

Sillysausage234 profile image
Sillysausage234

Hope your get sorted soon🙏If it’s left side pain and bloating might be irritable bowel or something your liver gives you right side under your ribs,try just eat small meals works a bit for me,do come on for a chat don’t be all alone grace 🌹x speak soon 🤞.