Hep C Positive

MEDS SOON TO BE WITH ME!

MEDS SOON TO BE WITH ME!

Yeeeees, I have just received a call from the hospital and my meds have been ordered. Now I am in the hands of healthcare at home, should take approx 10 days. Never been quite so excited this close to Christmas since very young. I am soooo relieved to be getting nasty chemical drugs :) Hopefully after 8 wks my bio will read differently. Big thank-you to Alan234

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oldestnewest

Told you so😊👍🙏☀️

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Yes you did 😊and I didn't doubt you 😃🙆

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I'm just on my way out ,really happy for you, I bet your made up see you laterxx

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Well done you for going to all those hospital appointments that's the hard bit I like yourself had probably been infected since the late 80 s and never thought I would go through with treatment refused the old style , so you've got 8 weeks that's nothing is it youlle sail through it you've got guts so embrace it and keep us informed how you are going on well done really pleased for you xx😊Alan

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Thanks a million for your support and encouragement 🎉🎉it means more than you can imagine. only 1 person in my daily world knows so this is my lifeline. I will do my utmost and definitely roll with it. Gonna go for broke on the work front until the pills arrive as I am self employed. Just think 2 months of hibernation, couldn't have chosen a better time 😂😂😂😂tears of joy 😂😂xx

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That's the way to go don't read the leaflet about possible side effects,just think about all the extra good energy that will come back no more fatigue, eat sensibly plenty of water and you will be finexx😊Bye for now alan

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Yes, I haven't read the books from the hospital, read enough bad stuff. Leafed thru them. I am the owner of my own body and haven't done bad considering in keeping healthy, bar this. I drink lots of water usually so will make sure that doesn't slip. Thanks for the advice much appreciated. I won't let you down 😉

have a good evening x

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It's really good to see you in such high spirits and wish you the very best a few weeks to go and you will be cured of it too xx😊Take care alan

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I can't imagine it truthfully, only known I have it since September. still in disbelief. Amazing how yourself and others coped so long in knowingly living with it. hats off to you🌞 take care also x

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The liver is amazing at repairing itself if you are kind to it I'm still alive I think because I avoided alcohol as I think hep c and alcohol means cirrhosis it can only cope with so much .... youlle be ok keep listening to Lisa gerrard 😊Alanxx

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Yes, I used to enjoy the odd glass of red wine with a meal but in Apr felt so poorly stopped even that. Never been a heavy drinker and I don't have cirrhosis ☺ I agree not a good mix. think I am so fit because of my healthy lifestyle. best to avoid alcohol after being clear? You may find this hard to believe but the liver nurse at hospital told me "of course you can have a drink at Christmas "uh hello, I have hep c chronic. Like you genotype 3a. Why have the columns got so narrow? Downloaded 3 hrs of Lisa, roll on hibernation time 😃😃😄x

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Good for you keep toastie warm until springtime my cirrhosis is minute no cause for alarm they said after 25 plus years...amazing 😊Good luck xx

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Oh babe that’s fab news!! Made up for you! What treatment are you getting? Just think it will all be out of the way very soon 😊💪 hopefully it will be me next 🤞 xxx

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Mega Thanks! I am to have the latest drug Mavyret, passed in the US in Aug. Yep you're next on our list, I will hold your hand every step of the way ☺ I am so happy I could almost cry 😂😂😂

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Oh brill I was hoping for Harvoni but after seeing a couple of posts it’s completely put me off sent me on one trying not to panic about my scan 😬 but am not gonna bottle it this time. Instead I’ve been imagine what it will feel like to get the all clear. Aww it’s lovely news I am buzzing for you! And I’m here to hold your hand too ❤️ xx

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I have been stressed plenty & worries about state of liver but keep focussing on this time next year for eg. I keep myself really occupied as to distract from symptoms. V hard sometimes, and like you have to take to my bed. But lately the busier I keep the better I feel in my mind. Do not bottle it keep up your Good work, you have come such a long way. No choice in my treatment, they offered I grabbed that offer. try if you can to avoid negative stories. Dr's will look after you as you will be monitored very closely 😍😍

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Yes if you are offered one of these new treatment regimens take up the offer don't read the horror stories on google if your tests say your good to go do it or you go to the back of the queue again,other people may have differing blood test results and alcohol may be a factorxxxalan

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I will it was actually on here I saw it 😂 a big warning about harvoni and going on about scans etc. Completely sent me into absolute panic. I’m already worried sick what they might find when I go for my scan. I almost decided to leave and not come back. To be fair it doesn’t take much to set me off I just need to be careful what posts I read and I’ll be good 🙄. I’m looking forward to seeing you sail through your treatment and being in the clear. 🤗 xx

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Youlle be ok focus your energy on the good things you like doing x

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Yes I will do 😊 still decorating so that’s been keeping me busy x

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Hiya c hope your ok ,them posts about harvoni maybe their cirrhosis is down to alcohol has harvoni been mentioned to you and have they told you your genome type and viral load yet?

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Hi Alan I’ve not been offered treatment as of yet just going through all the tests. I only heard of Harvoni on here and got my hopes up.Obviously I’ve no Idea yet if I’ll get offered that anyway🤣 If I haven’t got cirrhosis it’ll be a miracle almost every weekend vodka etc for years after I found out I don’t drink anymore one maybe 2 max on special occasions.I’ve just been on a path of self destruction for as long as I can remember. But apart from all that am actually good at the moment🤣 gen type I cannot remember I just remember they said I had the easiest strain to treat that was in 2005 x

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Ok so don't worry yourself about it the new treatment epclusa I think is for all types now with excellent results I'm sure the more complex treatments are for genome 1 if they told you yours was easy to treat trust what they say and try and avoid the vodka if poss I know it's hard in sociably acceptable company😊Xx

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I will I haven’t drank Vodka for a good few years now and I’ve cut all bad influences from my life.So I’m doing good where that’s concerned. I think I might of even had a liver scan when I was pregnant thinking about it I had all sorts of tests done than. I need to get out of the habit of always assuming the worse X

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Your doing great,at least now you can get to all the tests,and get sorted,I know in my case my life was upside down the last thing on my mind of a morning was going to a hospital appointment,I think that's why so many go untreated,also the old treatment didn't have much hope so you just had to take it on the chin,and accept that it would kill you one day ....good to see your ok you should of painted that ceiling now😊X

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I have twice and the walls 4 times just done the chimney gold so all I have left is the glossing.Then I can put up the new curtains I made to see how fab they are gonna look. 🤗 I have all sorts of little diy projects planned gives me a buzz knowing it was me that did it every time I walk in a room. Little things like that make me feel good. 😜 x

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Well done I bet it looks good with your creativity and keep going if it makes you feel good youlle have a lovely home to relax in👍Xx see you soon

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Yes that’s my plan it hadn’t been decorated in 4 years it was gloomy. I figured I spent so much time at home I’d feel a lot better with it all done and brighter colours etc I’ll put a pic up when it’s done. I got a quote just for the bay window £589 🤣 🤣 so far I’ve spent under £100 and mine is better. X

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I bet it is them painter and decorators just do a sixty minute makeover,don't have too many late night vodka come dine with me s when it's done😊X and keep dipping your brush in turps when your glossing xx enjoy what your doing .

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No that was for just the curtains 🤣 and a pelmet board lol. The decorating I do my self except wall paper we are gonna have to get someone in for the hall and landing and we got told £500 so am tempted to give that ago as well but it’s 10 foot ceilings and I’ve no idea what height it is going up the stairs. I’ve only ever wallpapered once when I was 17 🤣. X

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I was going to say that quote was expensive wallpapering is ok if you take your time,have a look on you tube for tips and the price of hiring the access stuff for a weekend for your stairs xx

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I will I reckon I can do it at least until I get to going up the stairs then am not so sure. We cannot afford it anyway. I only get £50 a week child tax credit. It’s took months of buying paint every now an again just to get everything.And I haven’t even started sorting Christmas not been bothered about that at all till now.😱 I have just got a pip form but looking at it I haven’t a clue where to start. X

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Go to a website called benefits and work they have a guide to help you fill the forms out properly message me if your stuck as I got enhanced rate at court xx👍

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Aww thanks Alan I was gonna do it last year but wasn’t sure I’d get it plus the form put me off. Things have gotten much worse this year health wise and financially. My son left full time education in January and got a job so everything I was getting got stopped. Almost £800 a month which was including housing benefit. And my husband is on a terrible wage. So it’s been a hard year all round. X

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I hardly read any now, I read too many horror stories too. I have had this for years and years was absolutely terrified too, but I do not have cirrhosis. I only found out in sept, totally panicked for sure. never even heard of it before, doh, now I have read all the good stuff on the drug company sites and success stories. Sail I may not but it will not be worse than what we feel like now! And we have to get the treatment. I was all for going to india if i couldnt get it here 😂😂Glad you joined this forum 👭 have you a scan date yet? xx

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Yes babe 17th of December and I’m more than likely gonna have to go on my own😱 Think am panicking so much as I’ve not been good over the years where alcohol is concerned. Partying and binge drinking I’ve been so stupid. I have an appointment at the liver clinic on the 4th as well with the specialist.Am trying not to think of it too much but it’s almost impossible.Am just gonna have to cross that bridge when I come to it at the moment it’s my mental health that’s causing me the most problems.But I have been feeling a bit better the last few days 😊 so I’m hopeful that it continues xxx

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Awww try not to worry. Not everybody who drinks, alcoholics too, get liver damage. I have a girlfriend who drinks like a fish everyday for the past 30/40 yrs. no liver problems. not saying it's ok to do this just it's fact. yes impossible not to think and worry about it. There would be something seriously wrong with you if you didn't! 😃😃😃and I don't think they could treat that 😂😂if you didn't have this to worry about you may find something else. not stupid at all, supposed to party, think of all the super healthy oldies that get sick from something. You are a real human being with passion. embrace yourself, 2 kids too, that is all good positive stuff. And you are sooo pretty 😁😁😁xx

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Aww thanks babe that’s just made me feel better! Am my own worst enemy when it comes to worrying.I can work myself up into a Right state sometimes 😂😂😂. And I will definitely be avoiding all the info on side effects.I’ll have too 😂😂 x

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me too, v easy when things bottled up inside and not spoken about. Then sometimes talking too much about it doesn't help either! 😱 it's crazy but alot of it is down to the virus. for eg I was sooo excited and ranted so much on here last night, paid the price today, so am back to staying as calm as possible. Always tell yourself when feeling the worst that it will pass. Always does, Just getting thru is the main thing. And when feeling good. go for gold honey 🎉🎉🎡🎡🌈🌈🌈I hope you're having good evening 😀😀xx

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Get exited as much as you likexx

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I'm looking forward to reading your posts. I too am starting all these nasty chemicals so thank you in advance for sharing your experience with me😊

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