My name is Sarah, I am 20 years old and live in Sydney. Around 1.5 years ago everything seemed normal, I'd always had trouble with fainting growing up- my GP put it down to blood pressure. One day whilst getting ready for work I passed out, it was the day my sister was due to have her first HSC exam. I didn't wake up for 10 minutes and I was confused for 20 minutes after. I was so afraid and shocked.. little did I know this would be the start of my emotionally draining adventure!
I was placed in hospital for a week, they discovered an abnormality in my heart rate. When resting or relax my heart rate sits on 39BPM, but the second I stand my heart rate raises to 120BPM. I was so worried, was I normal? Was I not taking care of myself? Investigation after investigation gave me the diagnosis of POTS syndrome and reflex syncope.
Since then I have been taken through so many tests, as my condition worsen and worsens. I wear compression stockings 24 hours a day, some days I'm wheelchair bound and others I am too tired to talk. As my mentality worsens, so does my heart. My rate is more abnormal then ever expected, I pass out at least once a week and if my body receives a common infection like a cold I find myself hospitalised losing consciousness multiple times. My specialists put it down to my body not being able to understand it's flight or fight response. I have recently been given the daunting news that after medication trial after trial I will be receiving a pace maker in 2 months... at the age of 20 years old...
And so, my real adventure begins. A pace maker at 20 years old. I have so many questions, why? How do I continue to stay positive?
My family are so concerned, and I hate being such a negative burden. I've lost so many friends, because of lack of understanding. I try my best to keep a strong exterior and face by fears with a positive mindset but I feel completely helpless. How will I ever overcome a constantly draining battle?