My wife experienced an absolute medical horror show 15 +/- years ago. One mostly small issue, 1 quick surgery on her head turned into 5 surgeries over 3 years and left her (and me) devastated. The results were nothing short of catastrophic for us. At the best hospital in new Hampshire with one of the worlds best neurosurgeons....and she was ALWAYS ignored, ALWAYS minimized...and the doctor was sloppy and careless because it just wasn't that big of a deal until his stupid made it one.
Both my wife and I skipped doctors after that....despite insurance, we never, not once went...never even met the primary on my insurance card.
That changed last April...I got a thing called Bells Palsy...think it is a stroke..terrible headache, half your face goes dead....not serious though. I ended up in ER, then my sister suggested I really needed it followed up on and referred me to a GREAT primary care doctor.
And of course it got worse...my doctor, hearing I had not even seen a doctor in over a decade was pretty thorough...and I knew I was so screwed when the DOCTOR called me (not a nurse, not assistant) with "oddities in the blood work".
So short story, Leukemia now...
I am very good at dealing with regular crazy....never bothers me. Medical Crazy, well I don't think so good...and frequently get overcome by anger, rage, frustration and the need to lash out and attack (which is so not me).
But I dunno how to even LOOK at 15 years ago, let alone deal with it.....I had blood work done yesterday and I am already thinking I have an appointment on the 11th with my hematologist ....and I think she ignores me ...and I know there is going to be a confrontation....but, ok I admit it...I WANT it, I want to rail and rage at her for ignoring me....which is 100% NOT me...she is nice and I like her even
I made a post recently in the CLL forum you can go read to see what I did recently and how much I regretted it...but I am pretty sure I will do it again or worse....
I dunno what to do....I am not afraid of dying at all...but I am terrified of doctors killing me because of being ignored or because they are careless....
Link to post I made over in CLL is here
Medical Crazy In Full Force This Week