My lovely guy has recently started to talk and interact with family and friends nearly a year after a major brain haemorrhage and after recovering from a serious fifth bout of sepsis ( during which the medics put him on end of life care until I got them to reverse it) Sometimes he is able to fully engage and is in the present and his old personality is there but recently he has started to get quite distressed and anxious thinking he is at work and has done something wrong which he obsesses over no matter how hard I try to tell him it’s not real. It’s real to him. He also isn’t aware he will no longer walk and tells me he’s been out walking ( he’s still in neuro rehab awaiting a nursing home place for a care and funding assessment) . I am working to get the house adapted to get him home. Im looking for advice on how best to cope with his anxiety and lack of contact with the reality of his situation. The neuro psychologist on the ward wouldn’t even talk to him a few weeks ago ‘nothing she could do’ I’m pushing for another go with that but her negativity doesn’t bode well. I’m sure this is a well trodden path. Where can I get advice and help to help him and know how to speak to him to make sure I’m giving him as much support as possible.
Thanks!
Written by
Kentcarer
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2 Replies
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Hi Kentcarer,
If you contact Headway they should be able to advise you regarding support for your lovely guy and yourself. I found the person I spoke to at Headway was lovely and empathetic. Sorry to hear you had a negative experience with the neuro psychologist, sometimes their ‘people skills’ can come across as lacking.
Hi, this must be very frightening for your guy. I can sort of understand the neuro-psychologist, although I would disagree with not talking to him, if only to establish if the thoughts are fixed.
There needs to be further assessment to the nature of the brain injuries as the sepsis may have impacted/or contributed to his thought processes. I mentioned "fixed" before, mean that thinking does change or deviate, and holds a common thread. So is the thinking fixed, if so, is this a deterioration, or is it transient, and likely to improve? Does he still display times where there is clarity of thought? Are there any other causes for his thinking? Any imbalances, or deficits in metabolism or endocrinology that could effect thought processes? Are there any medications causing this thinking, are are there any that would help?
Question everything to give him the best chance. 🍀
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