Seizures

[Starwars28]

Hi everyone not wrote a post for a while.I am still recovering from my three operations my fatigue is a nightmare and just been told i am having seizures by kings college London i explained I had been having what i call funny turns my wife had noticed when i was going off to sleep a lot of twitching and stiffening of my arms also during the day I would just be sitting and all of a sudden I would jolt like ive had an electric shock.We had a cruise 2 weeks ago and we were watching a show lot of flashing lights thought i was going to faint my wife was worried also twitching a lot came out of it and felt really tired several outher moments. Hospital put me straight onto clobazam and lomotrogine but will end up just on lomotrogine.

[cat3]

Sending best wishes for a resolution to your symptoms Starwars, and far better days to come. Cat x

[Starwars28 in reply to cat3]

Thanks cat3

[WinB]

Hi Starwars,

I have had Epilepsy since 14 years old and now an oldun. They were really slowing down then I had a SAH/Brain bleed and wham, back they came. I am on Clobazam also as they gave me Keppra but made my tum hurt. Depends on individual. My hand shoots up in the air and if I am not in a bed or chair it hurts about 1/2 mins to finish but to onlooker seems an age. Be well and keep happy, once you are on right pills all will be well. Try and think happy thoughts, and I wear sunglasses 1) It hides my bags..2) Stops strong lights getting in. Seriously they are scary things but we will beat it. Make sure if they change tablets you know side effects of them ..Wishing you well Win xxxx Oh and after one feel so helpless I cry and call for Mum who died in 1976 as I feel I cannot lift myself up xxxx !! Hubs is good at taking care of me though xxxx

[Starwars28 in reply to WinB]

Thank you so much Winb has been tough couple of years I had large brain tumour removed got an infection lost large part of skull plate fitted think I've had seizures for a while my wife observed me while asleep jolting stiffening of arms we waking with the shakes along with other things I wish you well.