Hello

[Tgirl79]

anyone about

[BaronC]

I wasn't, I am now

[Tgirl79 in reply to BaronC]

How are you

[BaronC in reply to Tgirl79]

I'm fine thank you. How are you?

[Tgirl79 in reply to BaronC]

Stressed, anxious,fearful, hubby had 3 seizures Saturday night, I can't seem to function very well

[BaronC in reply to Tgirl79]

Aah, I see. Sorry to hear that. Hope he's feeling a little better today. You too, obviously

[Tgirl79 in reply to BaronC]

Yeah hes feeling achy and because he bit his tongue that's quite sore, I think as long as he's seizure free the better I'll feel, thanks

[BaronC in reply to Tgirl79]

I sympathise and empathise. My tongue is scarred from my seizures even now, years after my last generalised

[Tgirl79 in reply to BaronC]

Suppose gotta take each day 1 at a time

[boxergirl777 in reply to Tgirl79]

Hey Tgirl79,

Sorry wasn't on line when needed a shoulder

how you feeling now?

Horrible when it's all so hopeless and everyone else in the world

appears to be sailing through isn't it??.....

Your having to be super strong but your allowed to feel crap....that's Okay......

I don't know how much support you have or if your husband is able to be alone for short periods, but it's important you have a breather, even hour to take yourself out of the home for a walk to feel fresh air clear the stress or if you like a long soak in bath with a face pack?, maybe a swim at local pool?

Whatever is your respite is then it's essential you take time to do it....short burst's are better than nothing.

If you are not feeling capable then your gonna feel so scared and this will stress you more and you really won't be any use to hubby ....

I'm sure he wouldn't want you feeling so low....

It's not selfish to have some time to recharge our batteries when we need to....please arrange something regular for yourself after hubby has been struggling with these dreadful cruel fits and you have been doing the lions share of caring for him.....

I reckon your an amazing person..... loving your hubby through the worst of the experiences that a couple could find themselves in....your a selfless lady to be fully respected.

Sending you big bear hug xx

My thoughts are with you , stay focused , it will get easier that i'm sure.of ....it's hard now... but you got this girl.....you and hubby a team together ....i promise you it will get better

[Tgirl79 in reply to boxergirl777]

hey, thanks for replying, was really touched by your kind words, yeah having to be really strong as we've got 4 kids, been really hard for them too, as they witnesses 2 of the seizures, yeah able to leave hubby for a short time while i take and fetch our daughter to school, but constantly on edge to rush back, not got much support really, as my family lives 45 miles away and hubbys 140 miles away, ooh long bath sounds lovely but wouldn't be able to relax with how things are atm

[boxergirl777 in reply to Tgirl79]

Yeah i get you , you def need to feel everything ok while your relaxing.....

i can see that's not easy for you to have any time....maybe your husband could speak to the professionals who looking after him and ask for some extra support at home to give you a break, usually they have people who can assist with these issues, and people give time to let you have a break,

this helps for hubby and family members

[Tgirl79 in reply to boxergirl777]

I know he'll say he don't need help, but with me feeling the way I do, I know in time I'll crack from the stress and pressure

[boxergirl777 in reply to Tgirl79]

Best sit down have a chat with him....let him know your in this together, you need a bit of support.....i sure he doesn't realize how hard your finding it all?.....

tell him exactly ....if he hears you say "i'm gonna crack if don't get extra help" then tell him he might not need the extra help but you do...if he's still refusing maybe a professional like a doctor or some one you think he will listen to will need to have a word with him

[Tgirl79 in reply to boxergirl777]

Hey, sorry for late reply, well today i cracked , really want to be strong but the fear i had has been causing me anxiety and i haven't slept in 2 days, still feel really edgy but felt the release was much needed, was like a ticking time bomb

[boxergirl777 in reply to Tgirl79]

Hiya,

What is your fear about?

glad you managed to get bit of release from build up of stress,

Did you have chat with hubby?

[Tgirl79 in reply to boxergirl777]

hey, think just basically of him having any more seizures, yeah we spoke and he's adamant we don't need any help