I suffered a TBI as a result of an attack back in 2005. I had an acute subdural haematoma which unfortunately grew so big a had a stroke to my right sided optical lobe.
It has left me partially sighted therefore I lost my job, degree and driving license.
I still get fatigued easily suffer from anxiety which is under control at the mo.
It’s good to hear of others in a similar situation which may sound harsh but it’s comforting.
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Jaxs050783
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Oh no that is so unlucky and an awful lot to lose! I had just graduated when i had my accident, so at least i got my degree. I've given up my car and driving too, but I don't miss it because I normally have someone with me when I go out.
I think fatigue and anxiety are very common after ABI, but doesn't make them any easier to deal with it.
I'm pleased it still give you pleasure. No we'renot great division 4 and often struggle for players, but I really enjoy team games and I've got the ball skills and just not the strength. I need to do weights like you 😉
I train for strength and have done since I was 18.
Brain injuries are complicated I’m still learning the effects to this day and mine was in ‘05. If u take yourself out of your routine/ normal situation u will find new challenges and find what you may or may not struggle with. The more u do the better, it can be depressing but we have the injury and must live with it. You can get faster and better at things, your brain is mouldable and can get better to a certain degree
Yes I know and that is stressful because you always think I should be trying harder and then I will get better. Yet there is a limit to it and only so far your brain can heal because of the damage.
Welcome Tony. Not harsh at all to need reassurance when you have a brain injury. There's so little understanding 'on the outside' and this is about the only place where we 'get' one another.
But after so many years experience you might find you're the one doing the reassuring. 😖
Sorry to hear you've lost so much ; it's a story we hear all too often sadly. And the fatigue too ; I still get meltdown after 6 years from not sticking to the medical rule-book !
Think the “meltdowns” will continue like mine. It’s just how u deal with them changes.
I also suffer from poor balance like you but mine is intermittent. Know one around me would know but it feels like I’m walking on a boat. That I feel is the biggest part is that everyone thinks he looks good so must be good. Little do they know I have a million things going on in my brain. Lol
Yes, 'On a boat'............definitely, and on pretty rough seas at times ! And we do inhabit a separate little world don't we, which most others have no conception of.............. x
It’s very weird walking one minute and everything is ok, then at a drop of a hat something says enough of walking normal have some of this! Lol. As far as explaining to others about effects I’ve given up. The only people that will truly know is effected people.
I do think sometimes it would be easier having a wife whom had a TBI lol
Hi, I would like to know more more about this Brain injury Cafe in Bristol. It sounds really good.
I was wondering how did you get the idea? Is it linked to Headway Bristol or independent? Is it a day centre set-up or something different? What does it offer?
Sorry I’m yet to meet anyone from any BI group. I live in Chew Stoke which is 15mins from Bristol.
I been contemplating meeting up with other Survivors as my mates and wife do not understand what I go through. My wife is a nightmare and she dismisses what I say, which I can understand seeing as though I had my injury in ‘05. In actual fact I don’t speak to my mates about it but that’s the way I am.
Hi Bonfire I live in bristol (and work for the council) I go to the cafe when I can but because I have to in my lunch break it is very hard because if I have a lot of work on I cant take 2 hours but I do go to a social group that Headway bristol run called HIYA its for 18-35 year olds and we meet up once a month as well as go to BIC when I can and had a article published by headway last year( headway.org.uk/about-brain-... and I show HR and they want to do a piece on our internal web page and share it around and there is a guy call Bruce who works for the council and lives in Yate (user name
brumatmed) and there is Dannys girlfriend Emma ( user name broken_doll)
I've been reading the posts and i can get where you coming from.I too have optical nerve damage (mines on the right hand side).I too have poor balance/co ordination.....resulting in being a permanent wheelchair user. I only have the use of my left eye as my right eye lid is down so I can only see in 2d and have no concept of distance .Door frames , gateways and curbs are a nightmare for example. Luckily my husband does the driving or I'd be really stuck.........
I had third nerve palsy where my eye lid drooped and my right eye was diverting but it resolved tself and returned to normal after doc said it wouldn’t.
I think they can do corrective surgery on droopy eyelids!
Speak to your GP and ask to be referred to a neuro opthamologist.
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