Post traumatic headaches: Hello never posted before... - Headway

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Post traumatic headaches

Valerie1986 profile image
12 Replies

Hello never posted before so thought I'd give it s try. I suffered a tbi in 2001 when I was 15, received barely any help and now suffer from post traumatic headaches to which no one medically want to help me with. I just wanted to know if anyone else suffers from post traumatic headaches and what help they received and how they cope, I've tried lots and sometimes feel it's just to much to cope with.

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Valerie1986 profile image
Valerie1986
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12 Replies
DawnD123 profile image
DawnD123

Oh how I know about the headaches! I had a SBH 22 years ago. In the first two years I had a constant headache including headaches which woke me up in the night. I couldn't wait to take my next lot of paracetamol. I finally decided they weren't helping and to be honest I think I may have been addicted to them in the end. These days I only take them if I absolutely cannot stand it anymore. I try to drink lots of water which helps.

Try to share your worries on here, it helps. Xx

stevenshaughton profile image
stevenshaughton

I was involved in a RTA almost 20 years ago. I suffer(ed) with severe headaches & it was not until a couple of years/tests/MRIs etc later that the Dr's told me that I have a skull fracture. I have pain killers & need to remember to drink alot water - I am very forgetful & would much rather drink coffee, which really does not help.

Hope you get to the bottom of the cause & find a solution.

allright profile image
allright

My daughter found Acupressure to be the most effective, painful but would seem to release your endorphins and stimulate their continued release

Valerie1986 profile image
Valerie1986

Thank you for your responses, I do try drink a lot of water and have cut out caffeine. Painkillers don't touch the pain and my last neurologist told me it would just make my headaches worse, I've tried acupuncture and have seen a crainopath I practice mindfulness but when the pains that bad it doesn't help. I have heard a acupressure, is it when you maggase accupunture points . I have no hope of further tests just don't know which direction to take next

randomphantoms profile image
randomphantoms

Hi Valerie and welcome.

Try keeping a diary single words are useful like work cleaning shopping and use a different colour for headaches.

This will help you work out if there are any triggers.

You could download the leaflets from Headway about coping.

As has been said caffeine is very bad and staying well hydrated is very good.

Love n hugs

Xoxo

Same thing 50 years ago .... absolute problem but eventually settled down. Take faith that you will slowly get better.

swedishblue profile image
swedishblue

Hi Valerie,

I was prescribed Nortriptyline 20 mgs for post sah crippling headaches, which were very effective if your life is blighted by them. I took them short-term and they also induced a good night sleep! I do still suffer headaches when I'm dehydrated, have overdone it or if barometric pressure's low.

I wouldn't be happy, and neither should you, if my gp dismissed any chronic pain issues! I do think it warrants further investigations as well. Make an appointment to see someone who's more sympathetic and interested in referring you to see a Neurologist. A tbi can return to bite you on the proverbial if you haven't been taking care of yourself.

Kati3 profile image
Kati3

Hello, i'm not sure if you have seen any of my posts but sounds like i'm in a similar position to you. I had my tbi in 1999 when i was 14, i'm only now going through the journey of acknowledging it and seeking medication for pain as i get post traumatic migraines, i'm also going to the walton centre tomorrow for a neuro appointment. I received no help after my accident and it was very much pushed away because i seemed okay.. Feel free to message me if you would like to talk more x

Valerie1986 profile image
Valerie1986

Thank you all for your replys makes me feel better. To answer comments: I have been tracking my headaches for the past few months and there very erratic. I have so may triggers I won't list them main ones being stress, light and sound, I've seen nearly ever doctor at my surgery but even the one I'm seeing now who wants to help me finds it differcult to offer me anything. I find it most differcult as I look ' normal' . Any other suggestions would be great

Dory2016 profile image
Dory2016

Hi Sorry to hear this.

Sometimes reducing the underlying stress to the nerves caused by the constant intrusion of headaches can assist better quality sleep and over a month or so the headaches start to ease as the body ability to cope with the problem improves. You might try these types of meditations to achieve this. Simply listen via headphones, the brain wave frequency is different in each ear helping the brain to balance both sides and settle its vibration to a single frequency, resulting in ease, best of luck (try each night before sleep and after a restful bath. Soaking 20 minutes in epsom salts nourishes the nerve each night so they have the tools to repair and rebuild whilst you sleep/rest) youtube.com/watch?v=fwmemnH...

Peppy2 profile image
Peppy2 in reply to Dory2016

Could you please send me this meditation video.

Valerie1986 profile image
Valerie1986

Thank you I will try this

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