After years of looking for some sort of brain injury support group, I found this one.
Here's my story.
In 2010 I started getting BAD headaches and angular fuzzy blobs in my vision, after 2 years of going to the doctors and being given migraine pills my wife insisted I be sent for an MRI scan, they found a large fusiform aneurysm in an awkward place in my brain. On Dec 21st 2012 I had a 6 hours op to coil the little blighter. Nearly 3 years on now and I still have the headaches but at least I'm still here. I suffer a great deal with the emotional stress of the condition and living in fear of what may or may not have been.
Written by
GT500
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Welcome to us lot! some of us B.I and some like me donot,i have a hubby who is reacovering from A.B,I this group is great,and so are headway,if you havenot already done so ring the helpline number at the top of the group home page,they are open from nine to five monday to friday,and are very helpfull.and as i say count the good days not the bad
Welcome along to the motley crew! Glad to have you here. Settle in, chat, discuss, say anything you like, somebody on here will know precisely what you are talking about and will be happy to help
Welcome, it's a helpful place here where you learn a lot; hearing how other people feel let's you realise you can cope, you will cope and you have to stay positive for your own sanity! Totally relate to you saying about emotional stress....it's an awful thing. Glad you found this group, all the best to you.
Hi GT and welcome. I had a coil fitted in Dec 2011 and still do have bad headaches but tend not to worry as I was warned it might be one of the after effects.
I remember feeling a bit vulnerable after my final MRI check .................
actually felt like I'd been cast out alone onto the wilderness !! .........but I think everyone feels like that in the beginning. And those specialist nurses are always available should we need support.
I guess you'll be plagued by fatigue like most of us here, but by now perhaps getting the hang of it ?
But any other issues you're concerned about, please ask.
Thanks so much people, you've definitely made me feel a little more positive. It's so hard when you're trying to explain to people what you've got and what goes with it, they haven't got a damn clue, especially when they come out with " but didn't the doctors give you the all clear" and the ever so helpful " everyone gets headaches, but has to get on with it "
I was recently told that I should try living with severe travel sickness !
Every day I take copious amounts of pills, every night I have to sit up in bed for half an hour or so to be able to lie down without getting a sledgehammer of a headache, I seem to live in fear of the worst with every sharp twinge I get.
I hate it.
Sorry to moan but at least you lot know where I'm coming from and I'm grateful for that.
Funny how some days are good some are really good and some are down right awful. I had a really good one yesterday but had an awful one last week, Had to walk out of a conversation because my brain wouldn't take it in, find that happens a lot lately and people think I'm really rude. Well I suppose I am but my brain just won't take stuff in like it used to. Your not alone mate. N
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