it just occurred to me: thought for the day :) and a... - Headway

Headway

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it just occurred to me

bikerlifestyle profile image
53 Replies

thought for the day :) and a picture of a bike carousel by destiny cycles

after seeing the post called

Congenital Aqueduct Stenosis causing Hydrocephalus

a lot of people know their full diagnosis, and i never really thought about mine

i know i have multiple areas of damage and although i am sure i must have been told at some point, i don't know exactly where these areas are.

and to be honest i don't really care, because i think i might end up over analysing it (which i tend to do), i know my brain injury by my symptoms not by the actual damage and that has always been enough, i just never considered the actual diagnosis.

but i am happy to be ignorant of it too :)

and i have just come back from a custom bike show where it was sunny and took hundreds of photos :)

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bikerlifestyle profile image
bikerlifestyle
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53 Replies
cat3 profile image
cat3

Yes, getting more information and searching for an accurate diagnosis is what you tend to do on behalf of somebody else, so you can get maximum help for them ( like Rachel and her son). But it isn't something I do for myself because,I agree that for some people, detailed knowledge can be 'too much information'

I have a similar problem with essential medication......and the accompanying leaflet listing all the side effects. I'm apparently gonna die if I don't take the tablets, but they might kill me anyway ! So I don't read it.

Oh........ and the bike..........makes me wish I were a lot younger, with more money than sense ! Fabulous !

Glad you're so busy. 8-) xx

bikerlifestyle profile image
bikerlifestyle in reply to cat3

very busy :)

but i reckon its a good thing not knowing because then if i knew the symptoms for an injury in that area, it would make me question my own symptoms, but as i have no idea what part of the brain does what or affects what then i have nothing to compare my symptoms against and less chance of me questioning them if that makes sense lol

Kirk5w7 profile image
Kirk5w7 in reply to bikerlifestyle

I think it makes sense!, I may have to think about it a bit longer, but it helped me make more sense of my symptoms, when I was told the damage had been done to my cerebellum, which I then had to google, of course!! Doesn't make the symptoms go away, but I've always needed to know the ins and outs of everything, I can't understand why I feel fine lying down but not standing and I can't get an answer on that one, any ideas anyone?

cat3 profile image
cat3 in reply to Kirk5w7

Definitely identify with the lying down/standing but can't explain it. Hate it when I wake up feeling ok and start to make plans.........then I stand up.........& stagger !! xx

Kirk5w7 profile image
Kirk5w7 in reply to cat3

that's exactly how it goes with me, I'm forever hopeful that one day I'll stand up and feel fine, I was never this unbalanced in the rehab unit, it's definitely got worse over the last 12 months xxxxxx

Kirk5w7 profile image
Kirk5w7 in reply to cat3

bit of imagery for you here, I woke up and had the image of the pair of us rattling round our respective houses like pin balls in games, made me smile!!!! Told youmy mind never stops!!!! Take care xxxx Janet

cat3 profile image
cat3 in reply to Kirk5w7

Thanks for that, Janet.........it's really what I needed today. Such a ridiculous image but so funny and strangely reassuring.

Feel better already... despite the 'wobbles'.

You take care too. Love Cat xxx

Kirk5w7 profile image
Kirk5w7 in reply to bikerlifestyle

Like the bike too, bet it was a good day xxxx

bikerlifestyle profile image
bikerlifestyle in reply to Kirk5w7

was a great day, took over 300 photos

Kirk5w7 profile image
Kirk5w7 in reply to bikerlifestyle

Wish I could get into photography, give me an excuse for wandering around, p'raps I'll start in the garden I've got some wicked sunflowers I put in this yearxxxxx Janet

bikerlifestyle profile image
bikerlifestyle in reply to Kirk5w7

i had a camera but didnt knowhpw to use ot properly but my local headway set up a photography group where a man from the birmingham photographic society would come and teach us

so we do this once a months

and the good thig is that photographs are my memories, so when i forget i can look back, and although i dont remember taking them, i know i did and i was there

Kirk5w7 profile image
Kirk5w7 in reply to bikerlifestyle

I'll just play around with the point and shoot we've got for this winter and

WOW! Fabulous photo. Thousands of hours spent on it, I'm sure but what a beauty! Thanks for sharing.

cat3 profile image
cat3 in reply to

I've just been studying the elaborate artwork. It's so exquisite but 'Rocker' & the colours are beautiful. Would this ever be ridden or would it be just for exhibit ?

in reply to cat3

I'm no expert, I would think it would be a 'fair weather only' ride. No wet, mud, snow. It is obviously someone's passion. Very talented. Notice a bit of a theme with our names!

cat3 profile image
cat3 in reply to

When I joined Headway I still had three ageing cats.......so not too original ! Hope you've got a really mysterious, interesting story behind 'Wolfie2dogs' ?? 8-)

in reply to cat3

I'm afraid I haven't. I am interested in the genetics of the dog, hence 'Wolfie' and I had 2 dogs! Now just have the one. Sorry no mystery.

cat3 profile image
cat3 in reply to

That's ok, at least your an animal person. My cats have all gone now so I'm cat-less for the first time in my life ! :-( x

bikerlifestyle profile image
bikerlifestyle in reply to cat3

i have a cat who thinks his name is 'shut the F^%K up'

bikerlifestyle profile image
bikerlifestyle in reply to bikerlifestyle

and here is a photo of him i took earlier tonight

dropbox.com/s/c51x9t673fqua...

Kirk5w7 profile image
Kirk5w7 in reply to bikerlifestyle

I had a cat last year,bought it before I became I'll, it was a short haired exotic, beautiful, it caught FPV and died last August, very traumatic :-(

cat3 profile image
cat3 in reply to Kirk5w7

That's very sad Janet. xx

Kirk5w7 profile image
Kirk5w7 in reply to cat3

I don't feel able to replace her yet, maybe soonxxx

in reply to bikerlifestyle

Aww. He sits like a little person.

bikerlifestyle profile image
bikerlifestyle in reply to

i was like, please don't move whilst i get my camera, normally he would have gone by the time i got back, but he was still there lol

Kirk5w7 profile image
Kirk5w7 in reply to bikerlifestyle

whata lovely cat, maybe!!!!

Lubilu01 profile image
Lubilu01 in reply to bikerlifestyle

Brilliant! We had a cat when I lived at mums who appeared from nowhere and ran under your feet half way down the stairs, can't say on here the names he got called, one began with T and ended in T! X

in reply to cat3

It's good to have them as companions but they do leave a gap in our lives.

cat3 profile image
cat3 in reply to

Yes they do. My favourite cat of all time was a big handsome b/w tom who struck terror into humans & fellow creatures with vicious teeth & claws. But he was like a teddy bear with me....very loyal and loving . Had him 19 years and really miss him.

scruffycat profile image
scruffycat

Now we live in a digital age there's no excuse for not taking loads of pictures. This was was taken years ago on proper film, when I was a bit more mobile than now. fbcdn-sphotos-g-a.akamaihd....

cat3 profile image
cat3 in reply to scruffycat

Great photo, scruffycat ! .......Love that name (& Wolfie2dogs) 8-)

in reply to scruffycat

Another fabulous photo.

Thanks.

bikerlifestyle profile image
bikerlifestyle in reply to scruffycat

great photo indeed, i have never done film photography only digital

cat3 profile image
cat3

Mark, Wolfie & I were wondering whether that beautiful bike ever goes out on the road (obviously on a clear, dry day) or whether these are just purely exhibition pieces. I can't imagine anyone having the nerve to get even a speck of dirt on such an immaculate machine but, there again, is it a crime not to ? x

bikerlifestyle profile image
bikerlifestyle in reply to cat3

its 50/50 some show bikes are difficult to ride (just pretty much a short distance) and others do 1000s of miles (albeit maybe not comfortable miles) but i know people from both camps

and there are so many people who say what's the point if its not going to be ridden in anger

but without the likes of builders that build show bikes pushing the boundaries of what can and cant be done then these ideas do not get filtered down and inspire others, it does bug me when i am at a show and hear people moaning about show bikes, but yet they are the first ones they will photograph

the boundaries should be pushed and unfortunately that is expensive

but also these bikes are an advertisment for the builder too, because a lot of their work comes from show bikes

cat3 profile image
cat3 in reply to bikerlifestyle

Thanks for that, biker. I understand both arguments and now you've explained that there are such bikes as 'show' bikes I can appreciate it more readily as a work of art. There's something really beautiful about the type of art which is also an intricate, functioning piece of machinery.

There's an oil refinery plant a few miles away from here which, during the darkness when it's singled out by it's own lighting, is a really awe inspiring sight, with its own particular beauty.

My mum once questioned my judgement after I took the children to see it one night (It's out in the middle of nowhere) and although my son thought it was 'ace' Lubilu told her it was very scary and she just wanted to get away ! Oops.

scruffycat profile image
scruffycat

Thank you. I'll be getting big head. I could go on but, the old days are best left alone. Go on then just one more

fbcdn-sphotos-d-a.akamaihd....

bikerlifestyle profile image
bikerlifestyle in reply to scruffycat

very nice indeed

scruffycat profile image
scruffycat

I can only apologise for the small renditions you get, it was the first thing that come to mind. They look more impressive when they're blown up. Honest!

The actual scruffycat. Not mine, just friendly. fbcdn-sphotos-c-a.akamaihd....

cat3 profile image
cat3 in reply to scruffycat

So this is the 'namesake' moggy......certainly lives up to his/her name but gorgeous with it ! :-)

cat3 profile image
cat3

I know this is a forum for discussing our brain-injury-related issues but it's been really enjoyable talking about other stuff for a change. And surely these 'other' subjects are all part of our lives anyway, with activities we're supposed to be aspiring to.

No, we don't want it turned into any old chat forum but there's something uplifting, yet comforting, in talking about our interests and experiences whilst being aware of each other's limitations............just once in a while................xx

in reply to cat3

I totally agree. It is good to share. On a selfish note I have really enjoyed seeing the pictures and the chat. Too easy to focus on the limitations, forgetting we are still real people. x

bikerlifestyle profile image
bikerlifestyle in reply to cat3

maybe we could name the posts so people dont get confused so a post starting with Off Topic: 'post title' then it could be used as a filter for non brain injury discussion, i just thing we have to careful we don't overdo it and have more off topic than on topic posts,

cat3 profile image
cat3 in reply to bikerlifestyle

I agree. x

scruffycat profile image
scruffycat

too true. Medicine doesn't always have a label and comes from unexpected places.

cat3 profile image
cat3 in reply to scruffycat

One last thing.......no matter how long I stare at it, I can't work out what your new photo is ?? ...sorry.... viewed it from several angles but ......no......

cat3 profile image
cat3

Got it now ............the interior of smashed up motor.........yours??

scruffycat profile image
scruffycat

yep .I had to crop it to get it on

scruffycat profile image
scruffycat

sorry dinner break but, gave mee more thinking time. as this was taken over 20 yrs ago now.

It's a Mini (remember this is 1992, so the old shape), with no roof, which is handy, as this was cut off to get me out.

cat3 profile image
cat3 in reply to scruffycat

I know none of us like to hear those words " Aren't you lucky", but looking at that wreck I'm afraid they're the first words that come to mind ! x

scruffycat profile image
scruffycat

I know I am but, I don't very often feel lucky

cat3 profile image
cat3

I know they're the forbidden words &, like everyone else, I hate it when anyone says them to me. It's all relative though. I mean, what people are really saying is " You're lucky not to be dead...........but what you do now with your damaged life is up to you".

I think I meant ......'Jes** Ch**st'........I can't believe you survived from that wreck !'

Do you mind me asking what happened and how you've been affected ?

scruffycat profile image
scruffycat

I would like to tell you all the ins and outs but I don't know a lot for certain and, sure as hell, nobody will commit themselves. Years of training to pass you onto someone else. You're better off clicking on my pic.

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